My father is a 72 yom who was diagnosed with GBM August 13, 2008. His first symptoms were subtle voice weakness and had some problems with daily crosswords puzzles. The surgeon told the family after biopsy that this was not in area that could be resected. R frontal area close to fissure of R parietal. WE were told possible 2 months without treatment perhaps a few more weeks with treatment. My father is a very active man, he loves travel and has been to california and Egypt a month ago. Very active, Devastating news
They set us up with appts with oncology and radiation. They suggested chemo and radiation with Temodor and this could increase his odds to months with the median 14 months with resection. We did get a 2nd opinion and this physician felt it would be wise to get Temodor and radiation.
HE has completed his radiation but has developed a nasty rash, intially this stared on his head, neck, chest area.(looked like areas where he could have had radiation) It has now spread to all over his body. He is miserable, he has tried benadryl, steroid creams, aquaphore. He was also given atarax, no help. He is unable to sleep and is itching so much. He just completed radiation less than a week ago. They are also weaning his decadron and he has developed more of a headache. They also took him off of his seizure medicine thinking that may remotely be causing rash.
Any suggestions!! Is there a reason to decrease decadron when things seem to get worse.