Oct 04, 2008 - 12:33 am
Hi, looking for parents, survivors, etc of this cancer. my whole family was crushed when my baby was diagnosed with embryonal rhabdomyosarcoma of orbit, cranial extension.
the doctors said surgery was "impractical" because of the location, it was like behind the bone that hold the eye, also some extension into the brain tissue near the eye area, and also even into the sinus around the right side of his nose..he just started chemo last week and radiation yesterday.he is "scheduled" (can't think of a better word for that)for 1 yr chemo as of now, and 5 weeks radiation
please... if anyone knows anybody who has had this type and area of the cancer pls email
i'm desperate,i look at my little boy who looks so beautiful, that i sometimes forget he has this cancer inside of him.. but then it just hits me again just like that,i cannot believe my own baby has it and just breakdown again. please please i need more info about the location of his cancer, experiences, anything.. thanks