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Surgery?

BudDean
Posts: 3
Joined: May 2007

I refused surgery but opted for chemo and radiation. Tumor vanished. (Stage 3 androcarcinoma) I am going on 7 years with frequent endoscopic examinations, biopsies and so far cancer free. My oncologist still wants me to have the surgery claiming that I am my own "clinical trial"....Although I would not want anyone to discount the advise of their oncologist, the survival rate of 25% led me to roll the dice. I probably would have gone through with the surgery if laprascopic were an alternative as it is now, but I am still holding out. I am forever grateful for the treatment I received at the hands of the VA Hosp in Long Beach, Ca. Don't believe all the bad press.

looliegirl
Posts: 5
Joined: Sep 2008

Hi Bud...I just read your post and good for you! Sometimes we have to make our own choices and sounds like you made the right one for you.

My mother just completed treatment for Stage 2 the end of June. She has had such awful nausea and her entire esophagus was ulcerated. She still cannot eat...everything makes her sick-even seeing food and the other day just coffee in the room made her gag. Did you experience any of these side effects?

Thanks and God Bless!
Cheryl

BudDean
Posts: 3
Joined: May 2007

I am unaware of any side effects from the radiation treatment and my first week of chemo
was uneventful. There was a week between my second treatment of chemo and I also experienced nausea and could not eat. I lost nearly 50 lbs! They offered me drugs to combat the nausea but to no avail. The only thing I could keep down was the hi calorie milkshake drinks. I experienced no loss of hair or memory but had sinus problems for nearly a year, which is a side effect for "some" people. My immune system was wiped out and I had to give myself injections of procrit ($400 a pop!)until my red blood cells
returned to normal.

My chemotherapy was very aggressive...24 hour drip for one week, one week off, then another
24 hour drip. I don't know if this is unusual but I know of other people who just undergo
hourly visits for chemo. My oncologist told me she was either going to cure me or kill me.

We all respond differently to drugs so I hope your mother is in the "responder" category
and wish her a speedy recovery.

looliegirl
Posts: 5
Joined: Sep 2008

How long did the nausea last? She is 2 months past chemo and radiation and still has it. We just wonder if she will ever get over it. Otherwise...with the feeding tube she is responding and she is a strong women. Thank you for your wishes!

Cheryl

BudDean
Posts: 3
Joined: May 2007

I frankly don't remember exactly how long before I was back to normal but I don't think
it was more than a few days after chemo, perhaps a week and I had my appetite back. I'm sorry I don't have any suggestions. I did just read about a new drug that might help.
Sept. 15, 2008 -- The FDA has approved Sancuso, a five-day patch that fights nausea from cancer chemotherapy.

Sancuso continuously delivers a steady dose of a drug called granisetron, which blocks serotonin receptors and helps prevent nausea.

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Dear BudDean,
I am new to this page, and I am so happy I have joined it. My story involves my father, Ray, 70, who was diagnosed with esophageal cancer Nov 2008. He too opted to not have the surgery to remove his esophagus and re attach his stomach to his throat. He had oral chemo and 6 weeks of radiation at University of Virginia Hospital.

After his chemo and radiation treatments the PET scan showed a lot of shrinkage of the tumor. At first it was easier for him to eat, but lately it has become difficult again. I think a lot of the problem stems from his mind. He worries about not being able to swallow so much that he makes himself get a lump in his throat. He suffers for a lot of anxiety.

Tomorrow, 11/23, we will go back to UVA for a check up. He is due for another PET scan. He is worried that the cancer has spread. He has been having trouble with his bladder, and trouble urinating. But....has not been to his primary dr. to have this checked. He will also be having his prostrate and psa levels checked.

He is now second guessing his decision to not have the surgery. The ongologist told us that my dad would most likely have a very hard time recovering from the surgery. He would have to be on feeding tube for quite sometime, and his quality of life would not be a good as it would be without the surgery.

I am just worried and concerned at this time. Thank you for listening. Thank you for this site. Any suggestions or help will be greatly appreciated.

Sincerely,
Tina Blondek

oriontj
Posts: 390
Joined: Jul 2009

So you didn't have the surgery and wow..you're doing so well...my husband's dr said, they are going for a cure...his chemo days were 12 hours once a week for 6 weeks and every day for the radiation.

You've given us hope we can beat this without surgery..

Thanks

oriontj
Posts: 390
Joined: Jul 2009

So you didn't have the surgery and wow..you're doing so well...my husband's dr said, they are going for a cure...his chemo days were 12 hours once a week for 6 weeks and every day for the radiation.

You've given us hope we can beat this without surgery..

Thanks

oriontj
Posts: 390
Joined: Jul 2009

So you didn't have the surgery and wow..you're doing so well...my husband's dr said, they are going for a cure...his chemo days were 12 hours once a week for 6 weeks and every day for the radiation.

You've given us hope we can beat this without surgery..

Thanks

oriontj
Posts: 390
Joined: Jul 2009

So you didn't have the surgery and wow..you're doing so well...my husband's dr said, they are going for a cure...his chemo days were 12 hours once a week for 6 weeks and every day for the radiation.

You've given us hope we can beat this without surgery..

Thanks

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