Aug 22, 2008 - 11:17 pm
I was diganosed with a type of ovarian sarcoma May 31 of 2008. My doctors have all told me that this is very rare.. I have actually heard that so many times, the word rare has become a trigger to me. I was told my my previous doctors that they honestly did not knwo how to treat this or what the appropriate next step was because there have only been like 5 cases in the world and most of the women were in ther 60's. As a 23 year old woman it is hard for me to believe that no one else had had this or knows what to do next. Has anyone else heard of this before or had an experience with this type of cancer before?? I am reaching out... My previous doctors told me there was really no data on this cancer and that they were using goggle and the internet to find resources... Any advice or knowledge would be so appreciated.