Jun 07, 2008 - 1:10 pm
Having benefitted from this site, I am contributing my case in the hope of benefitting the EC community and encouraging other victims of this insidious disease to share their experiences. I have finished radiation and chemotherapy and am maintaining a near-normal (ie demanding) work schedule.
Firstly, kudos to William66 for his tremendous, detailed, ongoing contributions to this site - especially to have the EC-specific category restored! His success story has been the greatest inspiration since Lance Armstrong. God bless you William66!
Secondly, this entry will necessarily be brief given the time demands of this disease superimposed on a frenetic schedule of a demanding job, house maintenance and family responsibilities.
Case details:  60 yo white male, scientist, 69" tall, normal weight 170 lb, nonsmoker, moderate beer drinker (15 yr), regular strength training, strong recreational cyclist (150-175 mi/week). History of CA on maternal side(breast, melanoma, pancreatic); none on paternal side. History of acid indigestion with chronic (>15 years) use of OTC antacids, especially at bedtime.
 Diagnosed with a poorly differentiated adenocarcinoma by endoscopy performed to alleviate dysphagia 1st presenting in mid-February 2008. CAT/PET on 20 March showed primary tumor in distal esophagus, with malignant activity extending to stomach and 2 regional lympth nodes.
 Radiation (11-19 MeV; AP and laterally) for 28 days. Concomitant cisplatin (once weekly) and 5-fluorouracil (96-hour infusions). I have suffered constipation (requiring enemas) fulminant enteritis (~6 days), debilitating back pain (~4 days) and moderate hair loss.
 CAT/PET on 27 April showed no "definite active malignancy" (encouraging, but inadequate to conclude remission)
 esophagogastrectomy scheduled for late June. Although intrigued by William66's recommenation of minimally invasive surgery, I defer to the judgement of my MD at the Indiana University Cancer Center as a preeminent EC surgeon and clinical researcher in EC.
I shall win this battle and be productive for many more years - especially to help guide my 3 gorgeous grandchildren to happy, successful careers.
My best wishes and prayers to all of you affected by this awful disease.