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varient hairy cell leukemia/lymphoma

Posts: 28
Joined: May 2008

april 06 we were told he had diabetes, he had bloody nose a least once a month, he had pain by his ribs and his body hairy was falling out, he was taking glimerpride know as ameryl 4 the diabetes he didnot have, he lost weight without trying and was taking naps alot ,and was eating sweets he never ate before,and he felt like he had to go to the bathroom and nothing would happen, the doctor said he was doing good...sept 07 i took my husband to the er ,he was bleeding enternaly he had a neuroendocrine tumor in his pancreas and a mass in his stomach, enlarged spleen, lymp node in his lung, nov 07 we were told he had varient hairy cell leukemia/lymphoma, lymphoma part was stage 4 nov 07 he had distal pancreatectomy and splenectomy, feb 08 his treatment for the vhcll was cladribine and rituxan, he got a full remission, april and may 08 his ca 19-9 was 98 high, he also got a ct , they found a 7mm leison on his liver, next octreotide scan, we would like to know, if anyone out there with vhcll has similar factors.

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