Jun 03, 2008 - 10:35 am
My husband has colon cancer that has metastisized to his peritineum and liver. He has been hospitalized since January 19, 2008(that's nineteen weeks). He has a small bowel blockage that is coming from the tumors that are scattered throughout his abdomen. He has had an NG tube in place since January 19th. He was able to go for 3 weeks without the tube during that time, but he got an infection and he ended up in ICU for 2 days. I have taken a leave of absence from my job and I spend most everyday at the hospital. We have a six year old daughter that has done an amazing job of handling this family crisis, but I am noticing a change in her moods. She is starting to withdraw from friends, and she is very tired most of the time due to the crazy schedule and trying to suppress her feelings.
The thing is- I have never heard of another situation anywhere close to this. Nineteen weeks in the hospital, no clear path in sight- Not even sure what to do when the CT results come back- the last two scans have not shown any growth or reduction in tumors. How much longer do we go with those same results???
My husbands quality of life is zilch. Most days are spent heavily medicated due to pain and nausea. What time he is awake, he is mostly confused, disoriented and sometimes hallucinating.
Is there anyone that can help me? Can anyone relate to our situation?? Please give me some advice.