May 17, 2008 - 9:20 am
My husband was diagnosed in March 2008 with high grade, stage 3, aggressive, Malignant Peripheral Nerve Sheath Tumor/soft tissue sarcoma a month AFTER the grapefruit sized tumor was surgically removed from his sciatic nerve in his pelvis. My husband is now undergoing chemotherapy with plans to have radiation too. I'm looking for others who have or have had this diagnosis, or others who are recovering from treatment from this diagnosis, or people who have a loved one who's has or had one of these nasty tumors. Most of the cases I've heard of have been in someone's limb. I'd like to hear your stories and discuss ours if you'd like. This is a rare form of sarcoma, with sarcoma being rare anyway, it's difficult to find anyone to talk to that has or has had a Malignant Peripheral Nerve Sheath Tumor (MPNST). Please contact me, I really would like to speak with you. Thanks.