2 weeks ago fri. told scamous cell carcinoma.
I was being treated for TB lympendentis for the large neck mass, for 4 months.
I moved from the jungle in costa rica back to maine last year.
I went to doctor in maine for just a check up told him about lump in neck he said keep and eye on it.
I moved down to rhode island in december lump swelled up big days before xmas.
Went to emergency room day after new years.
They did ctscan chest xray blood tests and a TB test. 72 hours later the TB test was positive so i was sent to TB clinic doctors told me it was classic TB lymphendentis 99% sure. After 4 months and it getting bigger they told me it was supposed to get bigger.
They finaly got me biopsy FNA and it was positive squamos cell carcinoma 2 weeks ago.
Surgical oncolist met with me for 15 minutes looked in my mouth with light and said tonsil cancer then clipped out a couple pieces.
Yesterday i finaly got to talk to the radiation oncologist for 15 minutes she looked in my mouth with a scope flashlight and said 3cm tonsil cancer and felt or saw a spot on my tongue also.
My neck mass she said in 9x6 cm but she said it was encapsulated?
She said they are still trying to get me a medical oncologist and a pet scan.
2 weeks of knowing nothing and not sleeping is tought. I have a 2 year old and a costarican wife who is overwelmed just being here in the states without anybody. So im hanging on because i have too.
I was caught just moving changing carrers so no insurance. I am only being covered by ritecare with i guess is rhode isalnd medicaid.
So i guess i am just getting whatever treatment whenevr they can get around to it.
They said they would try and get me a medical ongolgist and a pet scan next week.
That will be 3 weeks then i guess they all decide what to do how long?
Then i wonder if i can even get a second opinion.
and how long that will take?
Any way i got a computer and started trying to figure things out myself.
Thank you all