Has anyone survived stage 4 stomach cancer?

savebrother
savebrother Member Posts: 1
edited March 2014 in Stomach Cancer #1
Hi,

I just learned that my brother in China was diagnosed stage 4 stomach cancer last week. The surgery could not go on at his stage. However, the cancer seems not spread to lung, liver, but spread over his bowl.

It is devastating after hearing this. I read a lot of research papers and articles about it. I now know it is incurable, but I see about 3% survivors from statistics.

If any of you belong to those 3%, or know anyone in those 3%. Would you please let me know what you have done? As eating, sleeping, exercising, or any unconventional approach you or he/she have taken? I am trying to find something common in those survivors.

My reading told me that any conventional approach (chemo, target therapy etc.) normally go to a dead end. I am struggling whether I should suggest family to let my brother take a paliative approach, combined with some Chinese herbal, instead of continually using chemo. My brother said he is not afaid of death, but does like die in hospital with endless pain. I hope he can fight for his life, but I do not want him to suffer the pain on a route without hope.

Please help me.

Thanks a lot

Frank
«134567

Comments

  • Fred
    Fred Member Posts: 3
    I had something just short of this, with malignant cells in my abdominal cavity but no grossly visible tumor. I was treated with a new chemo regimen consisting of platinum, taxotere, and 5-fu and later had radiation therapy and surgery (gastrectomy). There was a complete remission of my tumor (and erradication of the malignant cells ) with the chemotherapy. No visible tumor at surgery, but some evidence it had been in 3 lymph nodes. About as good a response as one could hope for. Ask your brother specifically to ask his doctor about that chemo regimen.
  • reflorecer
    reflorecer Member Posts: 3
    My husband was diagnosed with stage IV stomach cancer this April, had his stomach removed 2 days later, and is now on 2nd round of 8 chemo treatments, to be followed, most likely, by radiation. We are also looking for survivors and also want to know any dietary or other tips or stories from survivors. My husband is 46 and our son is 9. Is your brother also receiving chemo, post-gastrectomy?

    We get much well-meaning advice from friends, but nobody has any experience with stage IV stomach cancer and we strongly share your desire for stories from experience and any research-based confirmation of dietary or other ways to improve the prognosis. I've heard about black cummin seed and about kombucha tea but not fom anybody with research-based or direct knowledge of stage IV stomach cancer. The advice to eat fresh fruits and vegetables seems so logical, but my husband's doctors advise cooking any but the softest fruits (so he's eating only melon, avocado, and papaya fresh). They also want him to eat lots of protein and carbs--frustrating advice, because they've also said he should avoid beans and other high-fiber non-meat sources of protein. He wants to eat lentils, but we can't get anyone even to advise us on that! One doctor has said to replace most lactose-containing foods with soymilk or tofu, but we have had little consistency in dietary advice even from medical professionals.

    Our online access is away from home, but I hope we can be in touch. Neither my husband nor I has used a chat room before, so we may need tips on "netiquette": Do we exchange emails or usernames, or how should we proceed? Does your brother know English? (or Spanish?) and want to communicate directly with my husband? I wish your brother well and hope we can continue to talk and learn from each others' and others' experiences!
  • rnicolosi
    rnicolosi Member Posts: 2
    My mother diagnosed with peritoneal cancer
    Good morning. My mom was recently diagnosed with cancer of the peritoneum. After many months of testing, not eating or drinking, they decided to remove her gall bladder. When they opened her up, they found cancerous cells in her abdominal cavity. She will have her fourth chemo treatment in a week and may be done after that. Her bloodwork all comes back looking good. The chemo is taking its toll on her. She is very depressed and listless. I was wondering if anyone has any advice as to how to deal with this? I cannot imagine how she feels, only someone with this diagnosis can understand. I feel helpless, like I should be doing more. I feel there are so many more options out there. She lives in a small town where they are not up on the most recent technology and advancements. She doesn't want to get a second opinion and have to go through more testing. She even refuses to check out this website and get more info or talk to someone. Her oncologist recommended she see a therapist and she said she would but hasn't done anything about it.

    Her oncologist told us that it's terminal but hasn't told my mom that. The testing did not find any tumors or masses anywhere else so I don't understand how it can be terminal. Can't the chemo kill the cells and put her into remission?

    Thank you for listening and any advice you can offer. And God bless all of you who are going through this.


    Robbin
  • SunnyD961
    SunnyD961 Member Posts: 2
    Stomach cancer survivor again...
    Hello. I am a 25-year-old Black female. I didn't know why I was sick at the time, but I was 23 years old, and I wasn't actually diagnosed with Stage IV stomach cancer until after my 24th birthday, mental and emotional toll, and a partial-gastrectomy in Feb. 2008. I started chemotherapy soon after surgery for 6 months finishing in Aug. 2008. Not even a month after my last cycle I was having symptoms again, and by Sept. I couldn't take it anymore. I knew why I was in pain, not having an appetite, getting bloated, and wanting to vomit. My heart told me my cancer was coming back. As of Sept. 2008, I am currently battling stomach cancer again. I will continue to go through every drug there is until there is no more, as long as I have more time with my family. My 3 year old son needs his mother around as long as I can be. As long as my Lord allows me to be here. I am going to fight until the end for my son, and my husband. Yes, there will be pain along the way. I am willing to bear it. Whoever said life's experiences would be easy and painless?

    I have been through too much death in my short life to allow an invasion of my body to take me to my deathbed lying down. Never. My father died when I was 3 months old, my brother at 14 yrs., my step-father at 16 yrs., my mother at 21 yrs. and my grandmother (her mother) at 22 yrs. old. Not to mention, other uncles and aunts, cousins and friends along the way. I shouldn't be afraid of death by now, but I am scared shitless. lol I should hate the world and everyone in it, but I don't. I should have given up long before I was stricken with cancer, but I haven't. I'm not going to.

    You tell your brother to fight for all he is worth. It will never be easy or painless all the time, but to have another moment with his children, nieces and nephews, parents, siblings, and friends. Maybe one day they will find a cure for us, and maybe not. He shouldn't allow today's drug pharmaceuticals predict his outcome tomorrow. Medicine has made huge strides over the years, and I don't think it will ever stop. So why should he? There is always someone worse off than you. Keep living and keep fighting.
  • My husband was diagnosed with stage IV stomach cancer this April, had his stomach removed 2 days later, and is now on 2nd round of 8 chemo treatments, to be followed, most likely, by radiation. We are also looking for survivors and also want to know any dietary or other tips or stories from survivors. My husband is 46 and our son is 9. Is your brother also receiving chemo, post-gastrectomy?

    We get much well-meaning advice from friends, but nobody has any experience with stage IV stomach cancer and we strongly share your desire for stories from experience and any research-based confirmation of dietary or other ways to improve the prognosis. I've heard about black cummin seed and about kombucha tea but not fom anybody with research-based or direct knowledge of stage IV stomach cancer. The advice to eat fresh fruits and vegetables seems so logical, but my husband's doctors advise cooking any but the softest fruits (so he's eating only melon, avocado, and papaya fresh). They also want him to eat lots of protein and carbs--frustrating advice, because they've also said he should avoid beans and other high-fiber non-meat sources of protein. He wants to eat lentils, but we can't get anyone even to advise us on that! One doctor has said to replace most lactose-containing foods with soymilk or tofu, but we have had little consistency in dietary advice even from medical professionals.

    Our online access is away from home, but I hope we can be in touch. Neither my husband nor I has used a chat room before, so we may need tips on "netiquette": Do we exchange emails or usernames, or how should we proceed? Does your brother know English? (or Spanish?) and want to communicate directly with my husband? I wish your brother well and hope we can continue to talk and learn from each others' and others' experiences!

    This comment has been removed by the Moderator
  • amandastam
    amandastam Member Posts: 4
    Fred said:

    I had something just short of this, with malignant cells in my abdominal cavity but no grossly visible tumor. I was treated with a new chemo regimen consisting of platinum, taxotere, and 5-fu and later had radiation therapy and surgery (gastrectomy). There was a complete remission of my tumor (and erradication of the malignant cells ) with the chemotherapy. No visible tumor at surgery, but some evidence it had been in 3 lymph nodes. About as good a response as one could hope for. Ask your brother specifically to ask his doctor about that chemo regimen.

    hello
    if there was no VISIBLE tumor, may i ask HOW the doctors diagnosed you ? i mean, with what method did they use to diagnose you? what symtoms did you have that made you go to the doctor? i can NOT get my doctor to take me seriously or give me any kind of catscan or anything else. i have symptoms, like, bloating after meals, feeling like throwing up, tired all the time, stomach discomfort......etc... but the doctor just says i have heartburn w/o running any test!
  • mtw40
    mtw40 Member Posts: 5
    LarryT said:

    I am stage 4, stomach cancer, have survived for 2 years, 50 years old, and male.

    To your question: I eat 5 to 10 servings of vegetables and fruits. A breast cancer study showed that having >5 servings of vegetables and fruits a day cut down cancer recurrence rate by 50%. I do not eat red meat. I do not eat salty, spicy, or oily foods. A rule of thumb is to eat fresh foods. Some traditional Chinese foods are bad in that regard due to special treatments for preservation. I exercise every day, starting from 10 min. a day last year to now 35 min a day. I sleep 8 hours a day. I appreciate life and am enjoying my life.

    I went thru chemo and radiation therapies. The success rates of those treatments are low, about 30% per my oncology doctor, but unfortunately are the best one can find today. Never give up those conventional treatments. In fact the best defense against cancer is our body's immunity system. And the best way to build up one's immunity system is to do what I said above. Unconventional approaches can be supplemental. Miracles do happen. I have seen at least one success case. Just do not bet on it.

    My life was not always like what I said above. I used to smoke, slept 4 to 5 hours a day, never ate breakfast, skipped lunch more often than not, had high pressure from work, and thus ill tempered. Looking back, I admit I deserved the cancer.

    Encourage your brother. Never give up. Never!

    stage 4 stomach cancer
    Hi,
    I was just recently diagnosed with stage 4 stomach cancer. It was a recurrence. I had gone 4 yrs. and thought I had beat it. I was happy to read that you are succeeding, but it made sad to read that you deserved the cancer. We all make mistakes, but no one deserves this. Good luck. I will try to be encouraged.
  • mtw40
    mtw40 Member Posts: 5

    hello
    if there was no VISIBLE tumor, may i ask HOW the doctors diagnosed you ? i mean, with what method did they use to diagnose you? what symtoms did you have that made you go to the doctor? i can NOT get my doctor to take me seriously or give me any kind of catscan or anything else. i have symptoms, like, bloating after meals, feeling like throwing up, tired all the time, stomach discomfort......etc... but the doctor just says i have heartburn w/o running any test!

    diagnosis
    In my original diagnosis, I ended up seeing a gastro doctor. I had ulcers and they did an endoscopy and a biopsy. That found the cancer. Don't give up. The doctors wouldn't take me seriously either. They were saying gallbladder, food poisoning, etc. The earlier it is caught, the better. Hopefully you are ok.
  • mtw40
    mtw40 Member Posts: 5
    SunnyD961 said:

    Stomach cancer survivor again...
    Hello. I am a 25-year-old Black female. I didn't know why I was sick at the time, but I was 23 years old, and I wasn't actually diagnosed with Stage IV stomach cancer until after my 24th birthday, mental and emotional toll, and a partial-gastrectomy in Feb. 2008. I started chemotherapy soon after surgery for 6 months finishing in Aug. 2008. Not even a month after my last cycle I was having symptoms again, and by Sept. I couldn't take it anymore. I knew why I was in pain, not having an appetite, getting bloated, and wanting to vomit. My heart told me my cancer was coming back. As of Sept. 2008, I am currently battling stomach cancer again. I will continue to go through every drug there is until there is no more, as long as I have more time with my family. My 3 year old son needs his mother around as long as I can be. As long as my Lord allows me to be here. I am going to fight until the end for my son, and my husband. Yes, there will be pain along the way. I am willing to bear it. Whoever said life's experiences would be easy and painless?

    I have been through too much death in my short life to allow an invasion of my body to take me to my deathbed lying down. Never. My father died when I was 3 months old, my brother at 14 yrs., my step-father at 16 yrs., my mother at 21 yrs. and my grandmother (her mother) at 22 yrs. old. Not to mention, other uncles and aunts, cousins and friends along the way. I shouldn't be afraid of death by now, but I am scared shitless. lol I should hate the world and everyone in it, but I don't. I should have given up long before I was stricken with cancer, but I haven't. I'm not going to.

    You tell your brother to fight for all he is worth. It will never be easy or painless all the time, but to have another moment with his children, nieces and nephews, parents, siblings, and friends. Maybe one day they will find a cure for us, and maybe not. He shouldn't allow today's drug pharmaceuticals predict his outcome tomorrow. Medicine has made huge strides over the years, and I don't think it will ever stop. So why should he? There is always someone worse off than you. Keep living and keep fighting.

    stomach cancer again
    Thank you for your words of support and my prayers are with you. I am 55 and recently was diagnosed with a recurrence of stomach cancer stage 4. I had it 4 yrs. ago - had the partial gastrectomy, radiation, chemo, etc. I thought I had beat it. This was a shock and I am having a hard time dealing with this again. Your words have given me hope. I wish you well.
  • DJ
    DJ Member Posts: 8
    rnicolosi said:

    My mother diagnosed with peritoneal cancer
    Good morning. My mom was recently diagnosed with cancer of the peritoneum. After many months of testing, not eating or drinking, they decided to remove her gall bladder. When they opened her up, they found cancerous cells in her abdominal cavity. She will have her fourth chemo treatment in a week and may be done after that. Her bloodwork all comes back looking good. The chemo is taking its toll on her. She is very depressed and listless. I was wondering if anyone has any advice as to how to deal with this? I cannot imagine how she feels, only someone with this diagnosis can understand. I feel helpless, like I should be doing more. I feel there are so many more options out there. She lives in a small town where they are not up on the most recent technology and advancements. She doesn't want to get a second opinion and have to go through more testing. She even refuses to check out this website and get more info or talk to someone. Her oncologist recommended she see a therapist and she said she would but hasn't done anything about it.

    Her oncologist told us that it's terminal but hasn't told my mom that. The testing did not find any tumors or masses anywhere else so I don't understand how it can be terminal. Can't the chemo kill the cells and put her into remission?

    Thank you for listening and any advice you can offer. And God bless all of you who are going through this.


    Robbin

    I was diagnosed with stomach
    I was diagnosed with stomach cancer, but when they did a loproscopy they found cancer cells had gone thru the stomach wall and were in the peritoneal cavity. I had a year of chemo, then another laproscopy and the cells on the peritoneal were gone. I immediately under went complete stomach removal. That was four months ago so I am new at this and also anxous to hear from people who have gone thru the same procedure. I have communicated with a 75 year old woman who had stomach cancer and had her stomach removed when she was 45. Just think how technology and medicine have improved in the last 30 years. There is hope for stomach cancer patients. I wish your Mom good luck and think positive.
    DJ
  • chrischeca
    chrischeca Member Posts: 1
    DJ said:

    I was diagnosed with stomach
    I was diagnosed with stomach cancer, but when they did a loproscopy they found cancer cells had gone thru the stomach wall and were in the peritoneal cavity. I had a year of chemo, then another laproscopy and the cells on the peritoneal were gone. I immediately under went complete stomach removal. That was four months ago so I am new at this and also anxous to hear from people who have gone thru the same procedure. I have communicated with a 75 year old woman who had stomach cancer and had her stomach removed when she was 45. Just think how technology and medicine have improved in the last 30 years. There is hope for stomach cancer patients. I wish your Mom good luck and think positive.
    DJ

    Very similar type of stomach cancer
    Hi DJ,

    I was diagnosed in Sep 08 with a carcinoma on my stomach, they also did a laparoscopy and found that the tumor had penetrated the wall of the stomach and was spread to the peritoneal cavity. I have been in chemo treatment for 7 months now and I still have hopefully another month or two of chemo. I have had 10 cycles of which 9 were with the same dose EOX (Epirubisin, Oxiplatinin and Xeloda) plus avastin. The 10th one was only the Avastin and continue with the Xeloda on a lower dose. I have been getting them every 3 weeks. I have another 2 to go with the reduced dose and then a CAT Scan. If the CAT Scan looks positive they will do another laparoscopy to see if the cells on the peritoneal are gone. After doing that, they will consider surgery or another alternative. Your story gives me a lot of hope since it appears we have the same diagnostic and now I know someone that was able to eliminate the cancer cells in the peritoneal cavity.
    I am originally from Mexico, just turned 40 and have a lovely wife and 3 beautifull children (8, 5 and 3). I am undergoing my treatment in Memorial Sloan in New York. Please keep in touch to see how are you doing. I wish you all the luck and remember that you will live for a very long period of time. If you have additional information that you would like to share with me please do so.
    Christian.
  • Tonia11
    Tonia11 Member Posts: 57

    Very similar type of stomach cancer
    Hi DJ,

    I was diagnosed in Sep 08 with a carcinoma on my stomach, they also did a laparoscopy and found that the tumor had penetrated the wall of the stomach and was spread to the peritoneal cavity. I have been in chemo treatment for 7 months now and I still have hopefully another month or two of chemo. I have had 10 cycles of which 9 were with the same dose EOX (Epirubisin, Oxiplatinin and Xeloda) plus avastin. The 10th one was only the Avastin and continue with the Xeloda on a lower dose. I have been getting them every 3 weeks. I have another 2 to go with the reduced dose and then a CAT Scan. If the CAT Scan looks positive they will do another laparoscopy to see if the cells on the peritoneal are gone. After doing that, they will consider surgery or another alternative. Your story gives me a lot of hope since it appears we have the same diagnostic and now I know someone that was able to eliminate the cancer cells in the peritoneal cavity.
    I am originally from Mexico, just turned 40 and have a lovely wife and 3 beautifull children (8, 5 and 3). I am undergoing my treatment in Memorial Sloan in New York. Please keep in touch to see how are you doing. I wish you all the luck and remember that you will live for a very long period of time. If you have additional information that you would like to share with me please do so.
    Christian.

    Hi Christian, my husband has
    Hi Christian, my husband has stomach cancer too. He couldn't have surgery because the cancer had spread to some lymph nodes. He had 3 rounds of chemo but the chemo had no effect and the tumor even grew a bit. He begin his 1st of 30 radiation treatments on Monday. He is 38 yo and we have 2 boys. I'm really hoping the radiation helps and he still can have surgery.
  • Lilllly
    Lilllly Member Posts: 16
    Tonia11 said:

    Hi Christian, my husband has
    Hi Christian, my husband has stomach cancer too. He couldn't have surgery because the cancer had spread to some lymph nodes. He had 3 rounds of chemo but the chemo had no effect and the tumor even grew a bit. He begin his 1st of 30 radiation treatments on Monday. He is 38 yo and we have 2 boys. I'm really hoping the radiation helps and he still can have surgery.

    My dad was diagnosed with
    My dad was diagnosed with Stage I and then they found a spot of cancer in a lymph node and instantly made it stage IV. As soon as they found the spot on the lymph node they went in and removed it (small incision). He finished his treatment plan and had to practically beg for surgery. Now, a year later, just two weeks ago he was declared cancer free. It does happen, there are chances and miracles out there. Keep the faith and support. Stay strong.
  • kat26
    kat26 Member Posts: 5
    SunnyD961 said:

    Stomach cancer survivor again...
    Hello. I am a 25-year-old Black female. I didn't know why I was sick at the time, but I was 23 years old, and I wasn't actually diagnosed with Stage IV stomach cancer until after my 24th birthday, mental and emotional toll, and a partial-gastrectomy in Feb. 2008. I started chemotherapy soon after surgery for 6 months finishing in Aug. 2008. Not even a month after my last cycle I was having symptoms again, and by Sept. I couldn't take it anymore. I knew why I was in pain, not having an appetite, getting bloated, and wanting to vomit. My heart told me my cancer was coming back. As of Sept. 2008, I am currently battling stomach cancer again. I will continue to go through every drug there is until there is no more, as long as I have more time with my family. My 3 year old son needs his mother around as long as I can be. As long as my Lord allows me to be here. I am going to fight until the end for my son, and my husband. Yes, there will be pain along the way. I am willing to bear it. Whoever said life's experiences would be easy and painless?

    I have been through too much death in my short life to allow an invasion of my body to take me to my deathbed lying down. Never. My father died when I was 3 months old, my brother at 14 yrs., my step-father at 16 yrs., my mother at 21 yrs. and my grandmother (her mother) at 22 yrs. old. Not to mention, other uncles and aunts, cousins and friends along the way. I shouldn't be afraid of death by now, but I am scared shitless. lol I should hate the world and everyone in it, but I don't. I should have given up long before I was stricken with cancer, but I haven't. I'm not going to.

    You tell your brother to fight for all he is worth. It will never be easy or painless all the time, but to have another moment with his children, nieces and nephews, parents, siblings, and friends. Maybe one day they will find a cure for us, and maybe not. He shouldn't allow today's drug pharmaceuticals predict his outcome tomorrow. Medicine has made huge strides over the years, and I don't think it will ever stop. So why should he? There is always someone worse off than you. Keep living and keep fighting.

    HelloI am a 26 year old
    Hello

    I am a 26 year old white female from England. Last year at 25 i was also diagnosed with stomach cancer and have had my stomach and spleen removed. I had five weeks of radiotherapy and 3 cycles of chemo (i lost too much weight to finish the planned fourth one). My uncle died at 27 of it and my aunt in her 60's. My mum had it also and had a partial gastrectomy and chemo in 2007. Did you have any family history of stomach cancer? do you know if you had the h pylori infection? did they give you any indication of why you might have got it so young? i started out just with the odd bit of food poisoning, or so i thought, about two years ago, then i started getting a pain in my chest and bloating when i ate. I told my doctor about it and he sent me for an endoscopy due to my family history. The doctors from the endoscopy told me it was only ulcers and gave me ulcer tablets. I took those and went back two months later and they told me the ulcers should have healed and discharged me! they said it wasn't standard to check with another endoscopy and i definitely didn't have cancer etc. Months went by and i got really ill, could barely eat anything without throwing up and was getting severe acid reflux etc. They then put camera down me again and said could see slight blockage but no cancer in biopsies etc. It was only when i got so ill one day that i got in touch with my mums cancer surgeon. He sent me for urgent PET scan and then called me in to be operated on the next week. When they operated they found tumour was actually in the stomach walls and whole stomach had to go. It had also just touched my spleen so they took that out too. It hadn't spread to lymphs but due to spleen it is a grade 4. He was furious and couldn't believe i hadn't been taken serioulsy from the very beginning with my family history. I always ate my five a day of fruit and veg, never smoked or touched drugs and excercised reguarly.

    I really hope you are doing well and keep fighting, my prayers are with you. This is such a tough disease but the fact we are still here fighting says alot xx
  • kat26
    kat26 Member Posts: 5
    SunnyD961 said:

    Stomach cancer survivor again...
    Hello. I am a 25-year-old Black female. I didn't know why I was sick at the time, but I was 23 years old, and I wasn't actually diagnosed with Stage IV stomach cancer until after my 24th birthday, mental and emotional toll, and a partial-gastrectomy in Feb. 2008. I started chemotherapy soon after surgery for 6 months finishing in Aug. 2008. Not even a month after my last cycle I was having symptoms again, and by Sept. I couldn't take it anymore. I knew why I was in pain, not having an appetite, getting bloated, and wanting to vomit. My heart told me my cancer was coming back. As of Sept. 2008, I am currently battling stomach cancer again. I will continue to go through every drug there is until there is no more, as long as I have more time with my family. My 3 year old son needs his mother around as long as I can be. As long as my Lord allows me to be here. I am going to fight until the end for my son, and my husband. Yes, there will be pain along the way. I am willing to bear it. Whoever said life's experiences would be easy and painless?

    I have been through too much death in my short life to allow an invasion of my body to take me to my deathbed lying down. Never. My father died when I was 3 months old, my brother at 14 yrs., my step-father at 16 yrs., my mother at 21 yrs. and my grandmother (her mother) at 22 yrs. old. Not to mention, other uncles and aunts, cousins and friends along the way. I shouldn't be afraid of death by now, but I am scared shitless. lol I should hate the world and everyone in it, but I don't. I should have given up long before I was stricken with cancer, but I haven't. I'm not going to.

    You tell your brother to fight for all he is worth. It will never be easy or painless all the time, but to have another moment with his children, nieces and nephews, parents, siblings, and friends. Maybe one day they will find a cure for us, and maybe not. He shouldn't allow today's drug pharmaceuticals predict his outcome tomorrow. Medicine has made huge strides over the years, and I don't think it will ever stop. So why should he? There is always someone worse off than you. Keep living and keep fighting.

    Hi I am a young stomach cancer fighter too x
    HelloI am a 26 year old
    Hello

    I am a 26 year old white female from England. Last year at 25 i was also diagnosed with stomach cancer and have had my stomach and spleen removed. I had five weeks of radiotherapy and 3 cycles of chemo (i lost too much weight to finish the planned fourth one). My uncle died at 27 of it and my aunt in her 60's. My mum had it also and had a partial gastrectomy and chemo in 2007. Did you have any family history of stomach cancer? do you know if you had the h pylori infection? did they give you any indication of why you might have got it so young? i started out just with the odd bit of food poisoning, or so i thought, about two years ago, then i started getting a pain in my chest and bloating when i ate. I told my doctor about it and he sent me for an endoscopy due to my family history. The doctors from the endoscopy told me it was only ulcers and gave me ulcer tablets. I took those and went back two months later and they told me the ulcers should have healed and discharged me! they said it wasn't standard to check with another endoscopy and i definitely didn't have cancer etc. Months went by and i got really ill, could barely eat anything without throwing up and was getting severe acid reflux etc. They then put camera down me again and said could see slight blockage but no cancer in biopsies etc. It was only when i got so ill one day that i got in touch with my mums cancer surgeon. He sent me for urgent PET scan and then called me in to be operated on the next week. When they operated they found tumour was actually in the stomach walls and whole stomach had to go. It had also just touched my spleen so they took that out too. It hadn't spread to lymphs but due to spleen it is a grade 4. He was furious and couldn't believe i hadn't been taken serioulsy from the very beginning with my family history. I always ate my five a day of fruit and veg, never smoked or touched drugs and excercised reguarly.

    I really hope you are doing well and keep fighting, my prayers are with you. This is such a tough disease but the fact we are still here fighting says alot. I have been through some dark days hating the world thinking why did i deserve this but i am trying to keep my faith. Really hope you are coping ok and would be great to hear from you xx
  • kitten0385
    kitten0385 Member Posts: 248
    kat26 said:

    Hi I am a young stomach cancer fighter too x
    HelloI am a 26 year old
    Hello

    I am a 26 year old white female from England. Last year at 25 i was also diagnosed with stomach cancer and have had my stomach and spleen removed. I had five weeks of radiotherapy and 3 cycles of chemo (i lost too much weight to finish the planned fourth one). My uncle died at 27 of it and my aunt in her 60's. My mum had it also and had a partial gastrectomy and chemo in 2007. Did you have any family history of stomach cancer? do you know if you had the h pylori infection? did they give you any indication of why you might have got it so young? i started out just with the odd bit of food poisoning, or so i thought, about two years ago, then i started getting a pain in my chest and bloating when i ate. I told my doctor about it and he sent me for an endoscopy due to my family history. The doctors from the endoscopy told me it was only ulcers and gave me ulcer tablets. I took those and went back two months later and they told me the ulcers should have healed and discharged me! they said it wasn't standard to check with another endoscopy and i definitely didn't have cancer etc. Months went by and i got really ill, could barely eat anything without throwing up and was getting severe acid reflux etc. They then put camera down me again and said could see slight blockage but no cancer in biopsies etc. It was only when i got so ill one day that i got in touch with my mums cancer surgeon. He sent me for urgent PET scan and then called me in to be operated on the next week. When they operated they found tumour was actually in the stomach walls and whole stomach had to go. It had also just touched my spleen so they took that out too. It hadn't spread to lymphs but due to spleen it is a grade 4. He was furious and couldn't believe i hadn't been taken serioulsy from the very beginning with my family history. I always ate my five a day of fruit and veg, never smoked or touched drugs and excercised reguarly.

    I really hope you are doing well and keep fighting, my prayers are with you. This is such a tough disease but the fact we are still here fighting says alot. I have been through some dark days hating the world thinking why did i deserve this but i am trying to keep my faith. Really hope you are coping ok and would be great to hear from you xx

    Also young!
    Kat26,
    I am a 24 year old that was diagnosed with esophageal cancer in October of 2008, I just finished chemo last week and will have a CT scan to check everything next week. The cancer was in part of my stomach, so I had surgery to remove my entire esophagus and a third of my stomach. I was diagnosed with ulcers my senior year of high school, and also with h. pylori. Interesting. The reason the cancer was found several years later was because my food was getting stuck when I swallowed, I was sent in for an endoscopy and had surgery a week later. I was diagnosed with stage 3 cancer, as it was in a couple of my lymph nodes but had not spread to any other organs. I had 5 weeks of radiation and four rounds of chemo, lasting 3 weeks each. Also, I never smoked, rarely had a drink, and was also healthy and exercised. I hope you are doing well and it was great to read your story!!
    Cathy
  • kat26
    kat26 Member Posts: 5

    Also young!
    Kat26,
    I am a 24 year old that was diagnosed with esophageal cancer in October of 2008, I just finished chemo last week and will have a CT scan to check everything next week. The cancer was in part of my stomach, so I had surgery to remove my entire esophagus and a third of my stomach. I was diagnosed with ulcers my senior year of high school, and also with h. pylori. Interesting. The reason the cancer was found several years later was because my food was getting stuck when I swallowed, I was sent in for an endoscopy and had surgery a week later. I was diagnosed with stage 3 cancer, as it was in a couple of my lymph nodes but had not spread to any other organs. I had 5 weeks of radiation and four rounds of chemo, lasting 3 weeks each. Also, I never smoked, rarely had a drink, and was also healthy and exercised. I hope you are doing well and it was great to read your story!!
    Cathy

    Hi Cathy
    Thanks so much for

    Hi Cathy

    Thanks so much for your reply and i am so sorry to hear of what you have been through. I hope you are still recovering well and your treatment is sucessful. How is it going? it would be great to keep in touch. Did you ever look into genetic testing for your family? x
  • kitten0385
    kitten0385 Member Posts: 248
    kat26 said:

    Hi Cathy
    Thanks so much for

    Hi Cathy

    Thanks so much for your reply and i am so sorry to hear of what you have been through. I hope you are still recovering well and your treatment is sucessful. How is it going? it would be great to keep in touch. Did you ever look into genetic testing for your family? x

    I am doing well as of now!! I go in a couple weeks for another CT scan, so I will know more then. We are going on vacation in a week, and am just enjoying life with my husband right now, so I would say things are going very well. How are things for you?? I have not done any genetic testing, but discussed it briefly with my oncologist, haven't done much else with it though. My e-mail is kitten0385@gmail.com if you ever want to e-mail me. I usually check it daily!

    Cathy
  • OCTOMAN
    OCTOMAN Member Posts: 21
    stomach cancer
    Yes I have survived stomach cancer for seven years I am eighty next years I always relate my age to my goal of living to eighty.psychology,you will need it to survive cancer,funny stuff,your own body attacking it self , Just this evening posted a revue of my experiences user name octoman. I find I should not continue I was up playing golf 14 hours ago if you have cancer do not push your self as I am doing.I will comment again.if you have a query.best wishes from England.
  • OCTOMAN
    OCTOMAN Member Posts: 21
    LarryT said:

    I am stage 4, stomach cancer, have survived for 2 years, 50 years old, and male.

    To your question: I eat 5 to 10 servings of vegetables and fruits. A breast cancer study showed that having >5 servings of vegetables and fruits a day cut down cancer recurrence rate by 50%. I do not eat red meat. I do not eat salty, spicy, or oily foods. A rule of thumb is to eat fresh foods. Some traditional Chinese foods are bad in that regard due to special treatments for preservation. I exercise every day, starting from 10 min. a day last year to now 35 min a day. I sleep 8 hours a day. I appreciate life and am enjoying my life.

    I went thru chemo and radiation therapies. The success rates of those treatments are low, about 30% per my oncology doctor, but unfortunately are the best one can find today. Never give up those conventional treatments. In fact the best defense against cancer is our body's immunity system. And the best way to build up one's immunity system is to do what I said above. Unconventional approaches can be supplemental. Miracles do happen. I have seen at least one success case. Just do not bet on it.

    My life was not always like what I said above. I used to smoke, slept 4 to 5 hours a day, never ate breakfast, skipped lunch more often than not, had high pressure from work, and thus ill tempered. Looking back, I admit I deserved the cancer.

    Encourage your brother. Never give up. Never!

    stomach cancer
    just to say 7 years ago I was diagnoesed with stomach cancer which had spread to my liver and kidneys,so no surgery possible or radiation either.My cancers do not respond to it.so chemo was the only option.But Ilive in England where treatment is free,so long waiting lists. So I too went to the immune system,fruit,exersize and no meat but I also went for no stress and plenty of relaxation I must not get tense,lose my temper,get angry,ect.after 2 years no chemo I had a PET scan(The travelling PET scan,was in a big van) had arrived in my town the scan showed the liver and kidney cancers were dormant but my stomach cancer was still active.So had immune system boosting worked,or was the surgeon's opinion I had liver and kidney cancers wrong that my late diagnoses meant the cancer had spread? (I had my first symtoms 12years ago and a barium meal and x-ray test,the diagnoses was I did not show a cancer only inflamation.I went on for heart tests then they found my heart was in great shape.Psychological tests.Any way,this is my experience,make of it what you will.Did you know they are working on a vaccine for cancer treatment that would help the immune system PS They wanted to remove my stomach and investigate my liver,after the PET scan result.But I would only agree to the cancer removal, they did not agree to that. They believed in maximum treatment.They have lost a lot of court cases through under treatment. by the way I will be eighty next year.I presume.