Mar 30, 2008 - 11:04 am
I chose Proton Therapy at UF PTI in Jacksonville, FL for early stage prostate cancer. Started in Jan. 2008 and ended Mar 6, 2008. In late Feb. I developed a burning sensation in the penis. I could not say if it was internal or external, but I was also super-sensitive to the touch of my underwear or bedsheets. At home I would wear only a shirt. My DR at UFPTI was stumped, having never had a patient with my symptoms. They started in 2006 I think. I suffered for over a month without relief. My GP gave me a jock itch ointment ha ha. I had a urinalysis and bloodwork at end of treatment. My PSA wa down from 4 to 2.8 I was given no meds other than Flomax and Peridium. I still take Flomax. The sensitivity kept me from being able to lie in bed without pain and I tried to sleep in a recliner with my knees drawn up to hold the sheet away from my penis. I got very little sleep, and no deep sleep. I was getting depressed and thought I could not go on this way. I went to a pain specialist. He immediately diagnosed me with damage to a nerve bundle that extends from the area of the prostate into the penis. He prescribed Lyrica 75mg every 12 hrs to build up to 200mg over time. I got 10 hours deep sleep the first night on this. I still have a dull pain at times but the sensitivity is gone and I have no burning like before. The pain Dr. had worked in Houston previously and had seen others with my symptoms who had been through proton therapy there. He thinks the pain will abate over time and I was relieved to find others on this site who have had similar pain which went away eventually. I just wanted to share my experience and hope anyione who has similar symptoms will add to this discussion.