Sep 21, 2007 - 3:40 pm
Hi! I am new to this board and am joining because I'm not sure where to go, and I'm hoping someone here can relate to what I'm going through. Two years ago I had a gallbladder attack and upon ultrasound, a large mass was found in my abdomen. I had a biopsy done, and it was diagnosed as cancer. I then had a CT scan and it was diagnosed as Focal Nodular Hyperplasia, a benign liver tumor, due to a central scar they saw on the CT scan that is normal on an FNH tumor. I did not have surgery to remove it at that time because I was pregnant. Once I had the baby and was done nursing him, I had surgery to remove this tumor. It was 10cm in diameter and upon dissection was found to be a neuroendocrine carcinoma. It was connected to my liver by a stalk, so none of my liver had to be removed. I had bloodwork done 3 weeks post op and my tumor markers were still high, so I just had more markers done yesterday and won't know the results until later next week. My question is, how do they know if this is the primary site or if it is elsewhere? I am so confused! If my markers aren't within normal range I then need to have further testing done to see if they can find more tumors in my digestive tract, since the CT scan showed nothing, but doesn't detect anything smaller than 1cm. And at what point post-op should the tumor markers be back to normal if there are no other tumors present?