Sep 09, 2007 - 12:44 am
I am very new to this network. I found the website after searching the net for awile. I have been very isolated since my operation, and recovery. The pain meds I take, mean that I cannot drive, and have to rely on my husband to get me to doc appointments, and so forth. This has caused me to experience a great deal of depression. Finally I thought maybe there was a source of support using the net. And it does not involve driving somewhere. The isolation was really getting to me.
As I am new to this, I do not know what the "norm" is. My first time in the chat room was fantastic. People all so kind, and supportive. My second time was not. After a really bad day I thought I would try the chat again. My surgeon is not giving me any follow up for my lung cancer, and does not want to give me pain meds either. I am left without a doctor at all now, and it is quite scary.
Then, in this chat room, for survivors and caregivers, I am accused of faking having lung cancer. That I am trying to get their attention and sympathy.. Because I do not know the type of lung cancer, just slow growing, they said that meant I was lying. In addition, because I am underinsured, my treatment is not the same as a person with good coverage. This I was told was another lie.
Do people actually go in the chat rooms faking cancer? I am afraid to go back in, I feel really fragile emotionally. Maybe some people do not know that health insurance does dictate the level of care they receive, or not receive.
What do I do? Does this happen a lot.? If so, I do not want to be a part of this network.