Does anyone have any information on adenoid cystic carcenoma when it occurs in the ear?
Sorry, I do not have info for the ear. But I did recently have a neck cyst removed just below the ear that was diagnosed adenocarcinoma. A second Pathologist opinion though ruled that out saying adenocarcinoma in a cyst is extremely rare and not likely to be the primary site. In my case the second opinion indicated an HPV16 tracer that usually ties it to a tonsil. And, guess what, on 7/25 they went in to take a look and found a very inflammed tonsil, removed it and the biopsy showed it to be regular squamous cell carcinoma and it was the primary site. All good news of a fashion because it will supposedly respond well to treatment. So, bottom line in my situation anyway, you may want to get a second opinion as to primary vs. metastatic. I hope it goes well for you. Please let us know as you progress. This Discussion Board is filled with very compassionate, knowledgeable "been-there-done-that's" who can help you as they have really helped me. Be well, and God Bless.............JK
Hey Kim.............how are ya doin?
Not in the ear but in the trachea. We were told that this is a very rare cancer.
I was diagnosed with it in 2006 while pregnant for the first time. I have had full body ct