CSN Login
Members Online: 5

Adenoid Cystic Carcinoma

Posts: 1
Joined: Aug 2007

Does anyone have any information on adenoid cystic carcenoma when it occurs in the ear?

jkinobay's picture
Posts: 247
Joined: May 2007

Sorry, I do not have info for the ear. But I did recently have a neck cyst removed just below the ear that was diagnosed adenocarcinoma. A second Pathologist opinion though ruled that out saying adenocarcinoma in a cyst is extremely rare and not likely to be the primary site. In my case the second opinion indicated an HPV16 tracer that usually ties it to a tonsil. And, guess what, on 7/25 they went in to take a look and found a very inflammed tonsil, removed it and the biopsy showed it to be regular squamous cell carcinoma and it was the primary site. All good news of a fashion because it will supposedly respond well to treatment. So, bottom line in my situation anyway, you may want to get a second opinion as to primary vs. metastatic. I hope it goes well for you. Please let us know as you progress. This Discussion Board is filled with very compassionate, knowledgeable "been-there-done-that's" who can help you as they have really helped me. Be well, and God Bless.............JK

jkinobay's picture
Posts: 247
Joined: May 2007

Hey Kim.............how are ya doin?

Posts: 6
Joined: Jan 2008

Not in the ear but in the trachea. We were told that this is a very rare cancer.

Posts: 5
Joined: Feb 2008

I was diagnosed with it in 2006 while pregnant for the first time. I have had full body ct scans, mri scans, pet scans, and a lumbar puncture. For me the primary is Adenoid Cystic Carcinoma of the Left Maxilary Sinus. Like you Deb, we too were told that it is quite a rare cancer.


Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network