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patupilone

collins
Posts: 69
Joined: Oct 2006

Has anyone out there used the chemo drug patupilone.
I am considering going on a study using this drug and understand it is quite new. I have been on carboplatin and topopecan. The carbo is playing havoc with my platelets and blood counts and once again have been delayed due to very low platelet count. I just had a ct scan last night and will get the full results either this afternoon or tomorrow so I am quite anxious at the moment. I will go back to the onc next Wed for more blood tests to see how my counts are doing and then we will decide if I stay on my current regiment or see if I can qualify for the new study.
eleen

BonnieR's picture
BonnieR
Posts: 1549
Joined: Jan 2004

Dear Eleen, Best of luck with the Patupilone, I am currently on Carbo and it is a hard drug for me too. Hopefully the ctscan will show the combo you've been on has been hard on the cancer too. Lots of prayers coming your way.

BonnieRose

floridajo
Posts: 485
Joined: Sep 2006

Collins
I don't know anything about this drug, you may go on..I'll be praying that the carbo is hurting the cancer more than it's hurting you!!!!(((hugz)))..Joanne

paula2
Posts: 163
Joined: Oct 2005

Hi Eleen, Always good to hear about something new..I hope you get to trial it. All the best to you.
Paula2

groundeffect
Posts: 651
Joined: Mar 2003

I went to a meeting of my support group yesterday, and have a list of about 20 chemo drugs that were mentioned there, and this is a new one. One thing I garnered from the meeting is that, once you've been on a study, you're not going to be eligible for another, in all likelihood. Is there a reason your doctor wouldn't want to try a "tried and true" drug, rather than a study?

One of the women in my group has had 17 different therapies (over 8 1/2 years), and the latest is Thalidomide (this lady is in her 70's, and just celebrated her 50th wedding anniversary!). She has tried a lot of experimental drugs, including Avastin. The Thalidomide is also considered experimental, and is not covered by any insurance. Another finished a study, would like to do another, and has been told she's ineligible because of the previous one.
Whatever your decision is, I do wish you the best of outcomes!

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