Apr 09, 2007 - 5:44 pm
My name is Paula (39 years old) and last month I was diagnosed with nasopharyngeal squamous cell carcinoma. I had one right side lymph node involved 1.5 cm which was taken out and that is how everything started. I did all the ct scans, mri,.... The scans show normal nodes and doctor does not think that other lymph nodes are involved. The mri shows a tumor of less than 1cm located in the nasopharynx (a bit below the brain) also confirmed by a biopsy through nasal scope.
My treatment begun march 21: 7 weeks of radio (33 times) with cisplatin at the same time 3 weeks apart. Rest 2 months and then 5FU.
The radiation is higher doses on the tumour and right side neck and a lower dose on the left side. This week I start the second cisplatin (3 days). So far I have been doing well. I have dry mouth, dry nose but I'm still using my mouth to eat (mostly soft foods) and I can still taste.
Basically, I would like to hear from some of you who have had a similar experience. I try to go day by day and to stay positive. This second cycle of chemo and the further radio sort of scare me but I am prepared to go all the way.
One thing that I'm not looking forward is the feeding tube and hope that I can eat through mouth all along however I am more on the thin side and I don't think I can afford to loose weight. I was given Jevity for tube feedings.
Sorry if this is long but wanted to give as much information as possible. I would like to hear similar stories, tricks to deal with this, if any of you know clinical trials or good web sites, suggestions, etc....
Take care and hope to hear from you,