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JennaMarie
Posts: 1
Joined: Feb 2007

Hi. My name is Jenna. I am 19 years old and my father recently was diagnosed with esophageal cancer. My life has really done a complete 180 when I heard about this. My dad was always that guy that everyone loved to be around. He was always the one to make a joke and make everyone smile. I can't remember the last time I've actually seen him smile though. It breaks my heart to see him lay in bed all day and be nothing but depressed. I've tried to get him to go talk to a therapist but he won't have it. I was just wondering if there are any survivors out there who would be willing to talk to my dad on a one on one basis through emails. I don't know what hes going through right now and I think it would be good for him to talk to someone who has been through and this and made it out strong.

If you are willing to help could you please email me at jmjax1@optonline.com and just let me know.

Thank you.

ideakbw's picture
ideakbw
Posts: 9
Joined: Mar 2007

Dear Bill,

Thank you for being of service on this message board! I have seen how you are sending hope to everyone on this board and I think it is wonderful. I just wanted to let you know.

My husband is a survivor of only 6 months and it is great to hear your story!

Thank you! Thank you! You truly are doing God's work!

Kim Brandon-Watson, Hermosa Beach, CA

meganucci's picture
meganucci
Posts: 11
Joined: Feb 2004

JennaMarie,

I was 19 when my mom was diagnosed too. If YOU need someone to talk to, please send me a message. I know what you're talking about. It broke my heart to see my mom in bed everyday and to see her so depressed. If you ever need someone to talk to please send me a message.

Stay strong for your dad and don't give up. Be there for him even though he might seem out of touch. DON'T GIVE UP HOPE!!!

ideakbw's picture
ideakbw
Posts: 9
Joined: Mar 2007

Mike, my husband was diagnosed with Esophageal Cancer May of last year. His cancer was most likely caused by Acid Reflux (Barretts Esophagus). He was scheduled for surgery to remove his esophagus in June at the recommendation of his gastroenterologist. This surgery is the standard in the U.S. for esophageal cancer.
His cancer looked like it was early. Therefore, I did research online and found another procedure that is the standard for early esophageal cancer in Japan. Japan detects esophageal cancer much earlier than the US, as they do routine upper GI tests. In the US we do not usually find it early, but that is changing with the awareness of Barrett's.

The new procedure (EMR) Endoscopic Mucosal Resection, is much less evasive and does not require surgery. It basically clips off the cancer from the esophagus wall with a tool attached to an endoscope. Then we found out a few hospitals in the US use this treatment. John Hopkins and the Mayo Clinic are the two top hospitals for this treatment. John Hopkins was the only one that states on their website EMR as one of their standard treatments for early esophageal cancer. We choose John Hopkins, Doctor Marcia Canto. She is one of the best in the world and has studied in Japan for many years on these procedures. It was amazing that John Hopkins took us without a referring doctor, but they did and they did quickly.

Mike had the ERM procedure and then another additional new procedure (PDT) Photo Dynamic Treatment, to just make sure we got all the cancer. This procedure requires an injection with a chemical "Photofrin". This chemical is activated by light to become a cancer fighting agent. For 2 days the Photorin collects in the cancerous areas and dissipates from the other areas of the body.(Except his skin) The doctor then goes down his throat with a laser endoscope and exposed the areas of his esophagus that may sill have cancer or pre-cancerous cells with the laser light. It basically burns off the lining of the esophagus. It was very painful for a few weeks and Mike had to cover up from head to toe, as he could not be exposed to any outside light, direct or indirect. He was photosensitive. He then gradually could have indirect/direct exposure to sunlight over 3 months.

November 1, 2006 we went back to John Hopkins to get biopsies to determine if he was cancer free. He was CANCER FREE. Three months later, he had his second biopsy on Feb 2, 2007 and is still CANCER FREE.

Dr. Canto is writing a 10 year study on these treatments and there is starting to be more awareness throughout the country. Her studies shows that there is a 93% cure rate - this includes early cancer and pre cancer patients.

Link to Johns Hopkins info: http://hopkins-gi.nts.jhu.edu
Look up EC and go to treatment.
So, there is hope!

He is back to his normal weight and feeling as good as ever! He can eat normal as well.

If you would like any additional information you can reply to this message and I will get back to you
NOTE: THIS IS FOR EARLY EC. 0-1 STAGE- ONLY PRESENT IN THE MUCOSA

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