Feb 06, 2007 - 5:54 pm
January of 2004 I was diagnosed with breast cancer and 2-4-04 I had a bilateral mastectomy. They did a head scan and noted some activity, I forget how they put it.
I had an MRI recently, due to some symtoms that medications were not curing, and the area that they had noted had grown so they say that I have a "lesion" in my mid brain (brain stem). This is usually only seen in children. It is not operable because of being in the stem. What I can read says that children survive this only 18 mos as an average. My surgeon was sorta blase about this. The lesion or tumor or whatever it is is not big but I am losing my hearing. Both ears. I had already been to an ENT to be sure that I had no ear problems, that ear drums were working, intact, no infections, water, etc. All was fine structurely, but they did check my hearing and confirmed the loss, which has gotten worse.
The surgeon said the location of this lesion/tumor would be the cause. There is a high pitched sound in both ears all the time, that is getting worse. Some days I feel like I will lose my mind. Add to that that there are lesions on the rest of my brain indicative of MS. So, on the 16th I will have the evoked potentials testing and then see the neurologist to find out the results.
When I was diagnosed with the BC, I had to insist on a biopsy and was treated like a head case for doing so. And, then I had very aggressive cancer. But, no spread. This is not a metastases, this is of it's own origin.
Here is my concern. It was there in 2004. It is supposed to be slow growing. So the neurosurgeon says, let's do an MRI in a year. Well, something happened almost overnight to take my hearing away. I fear that something has made it change, something has caused it to start growing, that it is or has been a slow growing thing but it has begun to change.
Is this possible? What do I ask? I am so afraid, I cannot breathe some days. I have been out of work since last July. I came out for mental reasons, and now we have found all this. I am fighting for my disability that I paid for from my company and waiting for a dx. I am 55 and this has really been a tough go. Closed a company and had to go back into the corporate world at 52, scared and unsure, and it has been bumpy.
Thank you for any info you can give me. I have found this site better than any other for support and help all through the BC. I do not even know if this is malignant, and neither does he, the neurosurgeon. I am not comfortable with a year.