Jan 31, 2007 - 5:16 pm
I was diagnosed in 11/05 with a primary tumor in my left lung. I am currently undergoing chemo to shrink the tumor for possible surgery. I have been told this is a very rare site for sarcoma and wonder if anyone has had any experience with this? It is rhabdomyosarcoma, sorry if I didn't spell that right, and usually kids get it not 49 year olds. They are unsure about my prognosis but try to compare it to 14-18 year olds which is 60% survival at 5 years if you do not consider the plueral effusion as stage 4. The cancer did not spread to the pluera until after the diagnosis so I and my oncologist still consider myself at Stage 3B. I have been unable to find any information regarding this type of tumor in the lung and my chances. It has been shrinking with the chemo which is a good thing but they are talking about a year's worth of chemo. Anybody had any experience with rhabdomyosarcoma?