This week, I was diagnosed with Vaginal melanoma. Prognosis doesn't look good for this type of cancer. Where can I turn for treatment?
I am so sorry to hear of your diagnosis..you can try to search this site or even google the words "vaginal melanoma" to see what comes up..perhaps your oncologist has some suggestions?
What are his treatment suggestions?
I am sorry that you have melanoma. I have Stage III melanoma (started on the skin and metastasized to a lymph node). There is an active melanoma group (MPIP) with a BB http://www.mpip.org/bb/bbindex.html that you might want to check out. Also, if you search the internet with mucosal melanoma in the search string, I think there is a group that deals primarily with that form of melanoma. However, I know there are people who post on the MPIP too that have mucosal melanoma and I've noticed a couple with vaginal primary's post. You may want to check out the NCI http://www.cancer.gov/cancertopics/types/melanoma and they have links to comprehensive cancer center. The NCI has ongoing clinical trials with melanoma and also has a database to search for ones near you. Best wishes, Carver
I am 28 yrs old and was diagnosed with stage three melanoma this past October. I don't know where you live but I am from Knoxville,TN. My oncologist sent me to Vanderbilt University in Nashville. They specify in melanoma cases and the doctors there are some of the best in the country. I can't say enough good things about them. Just an idea!
My mom was recently disgnosed with vaginal melanoma, also. We've been to several 'top' hospitals, including NYU and Columbia; however, we decided to take a trip to the Cancer Center of America, (there are 4 in the U.S. and all travel expensives are paid for by this Center) where she is currently being treated. We're pretty happy with the results so far. At this Center, she's treated as an individual, not a statistic. Be Positive!
Thanks - all. I've ended up at MD Anderson in Houston. I've had 2 surgeries to eradicate the tumor and in 2 wks, I return for radiation. After that is another consult, then I probably start chemo, which I can do here in IL.
This is mucosal melanoma and I've just learned about NCI and their PDQ's. Great website for general info!
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