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thyrogen

dutchy
Posts: 1
Joined: Aug 2005

Oh dear me, I don't know what to do for my husband now after reading some of the messages about thyrogen.
TG 9 suppressed TSH 0.01 T4 24.5

We will be going to see the doctor in 10 days time

I think they will be trying to find out why it's going up again.
I put a message on the yahoo site and someone told me to see about getting a PET scan with thyrogen,

I live in Australia, I don't know if our doctor does PET scans or uses thyrogen, we have never had it before ,we have had MRI or Ultra Sounds also he's had two RAI tretments

When I said to him about the LID he said he hadn't heard much about it and didn't think it was needed, but when he has to have his next RAI treatmentwe will do it then.

I 'm going to do a bit of looking around over the next couple of days, so when I go with him I can ask a lot of questions

KAY

I don't think yoou know what to do for the best one person says one thing then someone comes and said something completly different.

Rustifox's picture
Rustifox
Posts: 131
Joined: Mar 2005

Hi, Kay
Thyrogen is approved for use in Australia - there are details provided in a link at the bottom of this page:
http://www.thyroid.org.au/Information/Thyrogen.html

In North America, the use of PET scans is normally 'ok'd' when there is thyroglobulin positive/scan negative situations - so if the I-131 scans don't show anything, then they move to a PET scan. Here is some info about the use of PET scans in thyroid carcinoma:
http://bjr.birjournals.org/cgi/content/full/76/910/690

A thyroglobulin level of 9 when suppressed definitely needs further investigation, so hopefully your doctors can recommend you to a center where PET scans are used. I'm in Canada (also social medicine system), and we have very few PET scanners - sometimes only 1 in the entire province, if that; some Canadians are even being sent to the US for this, due to lack of equipment up here.

The LID is DEFINITELY worth trying if another I-131 treatment is planned - as an example, a mere cup of milk could definitely prevent sufficient iodine uptake. If you need more info to convince your hubby this is important, here is some data:
http://www.thyroid.org/patients/notes/july03/03_07_35.html
And here is a new LID cookbook, perfect for us thyroid cancer patients prior to scans or treatments - you can order this through Amazon.com in Australia:
http://www.lidcookbook.com/

Hope this helps a bit. Good luck with the doctors appointment! All the best to you.

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