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Scared to death about CT scan and kidney mass

Tibard
Posts: 1
Joined: Jun 2006

Hello,

I just received a call from my doctor today after having a CT scan of the abdoman, and pelvis (I'm having a lumbar spine CT next week).

I have a 1.5 centimeter mass in the right kidney. I've had back and hip pain and mild dizziness for the last year and a half. At night, I have pain that is not relieved by advil or aspirin. When I visited by Primary care during that year , he never suggested CT scans (my gyno recommended these). The lab results say the 1.5 centimeter mass has heterogeneous enhancement and the CT numbers are greater than 30 hounsfield units.
Does this mean I have Cancer? I can't see the urologist until July 10th and am freaking out about this discovery. I didn't sleep at all tonight. Did anyone get nausea and burning in the stomach? My doctor has been treating me for an ulcer and I don't think it is an ulcer anymore.

dleather's picture
dleather
Posts: 11
Joined: Apr 2006

Been there Tibard. I know what you're going through. Doctors told me I had little chance of remission. But I got there. And it's been three and a half years. Mine tumor was 7 centimeters. You gotta hang tough, girl. Don't let your mind carry you away. I know its tough, mentally. But you don't even know what it is yet. May not even be cancer. It could be a lot of things. But even if it is cancer, 1.5 cm is not that big. Mine was grapefruit size and I'm still kicking three and a half years later. Hope this gives you some relief. Plus I prayed too. That helped me a lot. Good luck, girl.

You know what Tibard? You should go to one of the two chat rooms. There is tremendous support there. You don't have to reveal anything about yourself you don't want to. You don't have to give your name and if anyone asks anything you don't want to answer just tell them you don't feel comfortable divulging that info. You'll find friends there. They will support you. We've all "been there". You can access the chat rooms from the screen that comes up after you log on. Later...

lbinmsp's picture
lbinmsp
Posts: 266
Joined: Jun 2006

Hi Tibard - sorry to hear that you're freaked out but that's oh so normal. Kidney cancer is a hard one to diagnose (such 'general' symptoms don't really point there initially). So CT scans, PET scans, blood work, etc. help pinpoint the problem and of course surgery is the only way to determine once and for all whether it is or isn't cancer. Remember, it's not necessarily a death sentence if it is cancer! Sounds like your tumor is quite small and that may be very good news. Hope you have a good doctor and that you have faith in him/her. Do your own research on the internet and ask lots and lots of questions. Knowledge is power! It also helps to calm the nerves a bit!

As for the stomach problems - could be the freaking out you're experiencing is creating those problems. But again - ask your doctor - ask every question you have - a good doctor will be glad that you're taking an active role in your health.

Good luck to you!

wjm1961
Posts: 11
Joined: Mar 2004

Hi Tibard,

Sorry to hear about your predicament. I know what you mean about freaking out, I did the same thing when I foud out. My tumor was just a little bit bigger than your. I had a partial nephrectomy in 2004. Oddly enough it was my Gastro doc who sent me for CT Scan because I was having a horrible bout of heartburn but he could not find anything when he did an endoscopy.

I know it is not easy but try and stay calm, enjoy your 4th of July. If your doc thought it was urgent you would be in to see a Urologist before the 10th.

I wish you all the best!!

Bill

Croakerjoe's picture
Croakerjoe
Posts: 5
Joined: Jun 2006

Hello..

All of us that have been through this know just how you feel. A 1.5 mass is actually pretty small for a kidney tumor and if it does turn out to be RCC, you will most likely be stage 1 and have an excellent chance of never being bothered with it again.

Just make sure your dr.s remain vigilant after the surgery just in case. Most people say that you should be scanned at least yearly for the rest of your life.

I'd think twice if they say they "got it all" and send you home with no follow-up.

- Joe

Gonemoondancing
Posts: 2
Joined: Apr 2011

Hey Tibard, how did everything turn out with the mass in your kidney.  I'm where you were right now.  I just got the call.  I've had low back pain on the left side for 4 yrs.  I also have wired burning pain in my left leg.  Ugh...nervous

icemantoo's picture
icemantoo
Posts: 1453
Joined: Jan 2010

Dear Gone,

 

Your post was a question to someone who last posted almost 7 years ago. We are here to help you, but please start a new post or join in a current one.

 

Icemantoo

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