Jun 24, 2006 - 8:19 am
Hello everyone, Frantic here again. Even though I do not post I do read the messages as you all are the best. I have been doing fairly well. Brief hx. (Although I am never brief). Ca/colon Aug.2003, Locally advanced stage 4, 8/20 lymph nodes positive. Had complications after surgey. The rest of my story is posted on the personal web page. As I do not want to bore you. My last pet scan was Jan. 2006 which was negative. I still receive transfusions every 6 weeks for this myloid dysplasia syndrome which developed in the bone marrow possibly from the radiation to the pelvis. I am transfusion dependent. I was started on this new drug called EX-JAde as its purpose is to take the iron out of the body. It was just approved by the FDA in Jan.2006. I have to dissolve 3 tablets in 7oz.juice every AM and drink it on an empty stomach. I began this May 6,2006 and stopped the drug June 1, 2006. I was tolerating the drug very well. On May 30th I developed violent stomach pains near the navel and the illeostomy expelled alot of diarrhea. My stomach has not been the same. Since then many blood tests were performed. One test which they do not normally do is the amylase and lipase which are digetive enzymes from the pancreas. The labs came back extremely high. I still have diarrhea.