Jun 16, 2006 - 9:57 pm
I'm a 22 year-old Stage 4 Nasopharyngel carcinoma survivor. I have come a really long way since treatment ended in September 2005, but I am not satisfied with my progress at all. I had a g-tube placed pre-treatment, and had it removed way to soon so I had a second one placed. It's out now, but eating is a nightmare. I dread doing it. The thought of trying to choke down much of anything, much less keep it down is repulsive to me. My mouth is always so dry, I get cracks and sores. My teeth are falling apart from the radiation, but having them filled is like building a house on sand. The pain in my jaw will not go away. After 2 surgeries, they've given up on fixing it. I can only open my mouth far enough to get my thumb between my teeth. Are there any long-term survivors out there that can put a light at the end of this tunnel? I have a little boy to live for. I know this is a long journey, and a battle worth fighting. I've fought so hard. I just wish there was an end in sight. Feel free to write me a firstname.lastname@example.org with any and all advice. Thank You.