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Nasopharyngeal survivor: Hep Please!

jillianjohnson
Posts: 2
Joined: Jun 2006

I'm a 22 year-old Stage 4 Nasopharyngel carcinoma survivor. I have come a really long way since treatment ended in September 2005, but I am not satisfied with my progress at all. I had a g-tube placed pre-treatment, and had it removed way to soon so I had a second one placed. It's out now, but eating is a nightmare. I dread doing it. The thought of trying to choke down much of anything, much less keep it down is repulsive to me. My mouth is always so dry, I get cracks and sores. My teeth are falling apart from the radiation, but having them filled is like building a house on sand. The pain in my jaw will not go away. After 2 surgeries, they've given up on fixing it. I can only open my mouth far enough to get my thumb between my teeth. Are there any long-term survivors out there that can put a light at the end of this tunnel? I have a little boy to live for. I know this is a long journey, and a battle worth fighting. I've fought so hard. I just wish there was an end in sight. Feel free to write me a jillianjohnson828@suscom.net with any and all advice. Thank You.

AuthorUnknown
Posts: 1561
Joined: May 2006

Hello,

I am sorry to hear you have had such a difficult time but it is wonderful that you have such a great attitude.

I encourage you to contact the American Cancer Society's National Cancer Information Center. They have a wealth of information and resources they can share with you. There may be local organizations as well that can provide support. They can be reached 24 hours a day at 1-800-227-2345 or by clicking on the "Contact ACS" link at the top of this page.

Take care and be well,

Dana
CSN Dana

mjung
Posts: 1
Joined: Jul 2006

This is good information for me. My father is diognosed with Nasopharyngeal Cancer and passed a few weeks ago. My Grandfather is from a small village in Soughtern China, Canton, which I believe is where this came from. I'm researching, without any luck, to see if there is a possibility that this can be passed on to me or my children. Hopefully the information and phone numbers you listed will be of some help. I seen my father, and all I can say is I bless you all and my heart goes out to all.

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