May 02, 2006 - 2:20 pm
Hi, my name's Sally and I have Hodgkin Lymphoma. So why am I here at the thyroid section? I'm helping a friend research a possibility of thyroid cancer, and being signed up as a Hodgkins survivor, I thought I'd start here. First off, she went to the doc because she's been on a diet, she's been exercising and she's gained weight. It happens that way sometimes, but she wanted her thyroid checked out, and that's all reasonable and well and good. She's new to the area, so this is the first time she has consulted a PCP. From what I know her blood work came back "normal" but they performed an ultrasound anyway and saw a mass or node or something. She's really not clear on this point and asking her doctor hasn't cleared much up. They biopsied and according to her PCP the results showed that it "was not an inflammation." Now, let me just say that I have a mom who has more problems with her thyroid than anyone I have ever met, she's been on Synthroid for ages, and whenever she had a biopsy it has come back with a clear "benign." I thought it was the point of a thyroid biopsy to determine benign or malignant. But either way, for whatever reason, the PCP has said that they can do as many biopsies as they want, but it's not going to come back determined. She asked if it was an interior or exterior node, and he said they couldn't tell. He's scheduled her for surgery (without bouncing her to an endocrinologist first) but she wants a second opinion, which I think is wise. Can any of you possible shed some light on this confusing situation?
Is it common for there to be nodes of indeterminate origin on a thyroid? Is it possible the thyroid doesn't have a node, or inflammation, and is swollen up anyway?
Should she see an endocrinologist first? I mean, I would think so, but she's scheduled for her first surgical appointment on the 10th. Will the surgeon bounce her to an endocrinologist?
What's the deal with not being able to determine malignancy from the biopsy? That's kinda odd (in my personal cancer experience sort of way).
Replies and references to more material dealing with this stuff would be appreciated.