Apr 09, 2006 - 4:32 am
It's been 5 weeks since my surgery. I had decided to go for a total laparoscopic nephrectomy but when I talked to the doctor on the morning of surgery, he convinced me to allow him to try for a partial laparoscopic nephrectomy. He cut into positive margin so ended up taking the entire kidney anyway. After I learned he cut into +margin, I was very upset with him for talking me into allowing him to try for the partial. I will forever worry that he allowed the opportunity for cancer cells to escape or contaminated healthy tissue at the nephrectomy site with the cutting tool when he took the rest of the kidney out.
The morning of surgery is no time for a doctor to convince a patient to change their mind and some friends have suggested it is outright unethical because you're very volunerable & scared and the doctor took advantage of the patient trust. I do wonder if he really had my best interest at heart or if he wanted to practice doing a lap. partial neph. on me. There are very few doctors who are skilled enough to do these surgeries. While he's a skilled lap. surgeon, partial lap. neph. is relatively new to all surgeons.
I was EXTREMELY depressed about this for 2 to 3 weeks after surgery. As I've recovered & felt stronger physically, so has my spirit. The doctor told me that he is comfortable saying that there was no chance any cells escaped. However, the other doctor who took care of me while in the hospital (my doctor has been pretty much MIA since surgery) said there is a small chance. Who do I believe?
While I'll never forgive the doctor, I know there is nothing I can do about it now & so I am trying to focus on things I can do...such as finding a different doctor, eating organic foods, & trying to stay positive. Some days I'm more successful than others with that. I'm partly seeking a new doc because my trust has been shaken in my doctor to say the least but also because he's been unreachable since the surgery. While in the hospital, two of his colleagues took care of me. He came to see me once the entire time I was in the hospital. That was the day after surgery & only after I got extremely upset & demanded that he come to see me. I was stunned that he would just completely abandon me after surgery like that. I mean, I was told there was a small chance it wouldn't be cancer prior to surgery (which I now know it was). Also, I didn't know if he ended up taking the entire kidney or just part of it. ..shouldn't it be standard to come the next day to discuss what happened & what was found? Has anyone else experienced this type of treatment from your doctor? And if so, what did you do about it?
I've had quite a bit of abdominal tenderness & swelling. Is there anyone else who's had the laparoscopic surgery that could share how their recovery has progressed & any tips for healing? Afer my 1st day back to work (which was only 4 wks after surgery & at least 1 wk too soon) my lower abdomen formed these strange lumps/disformations that lasted until the next night.