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Malignant Mixed Mullerian Tumor of the Ovary

paula57
Posts: 93
Joined: Jul 2005

I tried this several months ago, but they say never give up. This is the cell type of Ovarian Cancer that I have. I have read everything that I can find and I know that it is very rare. It is a combination of carcinoma and sarcoma and it is generally more progressive. I was diagnosed Stage 3B,12-3-04, and had 8 chemos of carboplatin and taxol. So far, I have not had a recurrance and feeling okay. Is there anyone out there with this cell type? Thanks! Paula

ishkay
Posts: 1
Joined: Feb 2008

I was diagosed w/the same type of cancer, but in the uterus. Had a hysterectomy Nov.'07. Currently going to daily radiation. Would like to hear from you or anyone else w/the same cancer to compare notes & treatments.

Viking45
Posts: 1
Joined: Apr 2016

My dear friend has been diagnosed with uterine carcinosarcoma stage 4. So far she has undergone treatment with ifosfomide/taxol which hardly phased it. She is now on a trial of Cabozantinib which is a targeted drug. We are anxiously awaiting a CT scan in a little over a month to see whether this one makes a difference. The tumors are also classified as Mullerian. I assume that the carboplatin/taxol is doing something or they would have stopped it a long time ago. Our doctor would have tried carboplatin/doxil has she not been able to get into the trial.

Kvdyson's picture
Kvdyson
Posts: 82
Joined: Jan 2016

Hi Viking45, I am also battling uterine carcinosarcoma (stage 1b, grade 3). I am so sorry to hear that front line treatment has not made a difference for your friend. Hopefully the trial drug works this time. You may want to try also posting in the Uterine cancer group. There are several others on that group who are/have battled this rare and aggressive cancer who may be able to provide you with more experience that I can offer. Wishing you strength and peace, Kim

Surgery: TAH & BSO, 14 lymph nodes excised, 10.5 cm - Sept 2015; 47 years old

Dx: Uterine carcinosarcoma (MMMT) Stage 1b, Grade 3 - Sept 2015

Frontline: Chemo (Taxol-day 1 & Ifosfamide/Mesna-days 1-3) - 6 rounds - Dec 2015 - May 2016

Radiation - external, 28 treatments, completed Mar 2016