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problems after nephrectomy...anyone else have this?
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Jan 11, 2006 - 12:25 am
Hi! I had a full nephrectomy 5 months ago and I am still severly swollen on that side. I am numb (feels like when your hand goes to sleep) from my hip to 1/2 way down my thigh all the way over to my groin area. This is all the time... I have not had feeling since my surgery. I have sharp stabbing pains all the time in this area. I have swollen lyphm nodes all over my body. Anyone else have any of these things? If so how long before you were back to normal? I can take pain.... I was even discharged from the hospital without pain meds because I did not take any while I was in there after the surgery. But, I do not know how much longer I can go with this feeling. I always slept on my left side and now I can not. Any type of pressure (even from my jeans) causes pain over the numbness. Please HELP! |
Joined: Aug 2005
Hi. I had the numbness also. It lasted about 6 months, I think. I had a bulge that I worried about, but if you read this site, you will see it is common. I used to sleep on my right side but now I can't. I have CT scans every 3 months. Hope all goes well.
Joined: Jul 2005
hi, hannah,
i also had the exact same thing, i am coming up on my 12 month mark and still have no feeling in that same area, i can however sleep on that side now, it just feels very peculiar. weren't you the lady that had a nephrectomy that wasn't needed? i had the weird pains and tinglings for 6 months and even after that if i lifted something heavy or overdid it in any way. everyone is different. i saw several e-mails from people who were back to work in 3 weeks with no pain etc. at first it made me paranoid, but everybody's situation is different.
Joined: Jul 2005
Hi! Yes I'm the lady that had the nephrectomy that did not need it. I'm just worried that something else is going on.... the numbness is getting worse not better and the side pain that I had that started all of this is back just as bad as it was when I had my kidney. The "bulge" is getting bigger too. Guess I dont understand why. I was hoping to chat with some people who has went through this and can give me some insight. Because, needless to say, I'm afraid to go to the Doctor.... I'm afraid they will tell me I have cancer some place else. I did have a biopsy on several lymph nodes in December because I have them enlarged all over my body. Which came back OK. But I'm not sure I can handle hearing the big "C" again for awhile... I was told cancer 2 times in 6 months (rcc & lymphoma) which turned out not to be....THANK GOD! Well, thanks for all your help and sharing your experience with me.
Joined: Jul 2005
hannah, check out the kidney cancer site at http://cancerguide.org/kofaq/ it is great
Joined: Jul 2010
I am also a lady who had the partial nephrectomy who did not need it. Turns out it was an oncocytoma, rarely cancerous. My problem now is the BULGE! I had the surgery in 2006 and every year this bulge is getting larger. Like a few people have said, it is not too bad in the morning and it grows steadily thoughtout the day. It is severely disabling, sometimes it makes me nautious and it always hurts. I find myself holding it all the time. i was told it was muscle damage as a result of a nerve being damaged and there is nothing that can be done. I find this hard to accept and I can't believe there is nothing anyone can do. Has anyone heard of a treatment?
Joined: Oct 2004
It has been 17 months since my nephrectomy. I still have much numbness in that area. Also, I was a side sleeper before my surgery. Now I have much pain when trying to sleep on my side. I fell as though they put a drawstring in me and I am puckered too tight on my right side inciscion.
Joined: Jun 2006
I had radical left nephrectomy 5 years ago. Still numb in some areas. The swelling took about 6 months or more to go down. I can now sleep on that side easily. I can say that it took two years before I felt normal and had my energy back - my surgeon said that was very normal. Hang in there - your body has had a major shock and it takes time for it to adjust fully.
Joined: Jan 2009
I am 3 years post op, and still have a lot of numbness, tingling and PAIN in the nephrectomy site. I too am hoping for an end in sight. Hang in there, i've heard that it is normal.
Nic
Joined: Jan 2009
Hi Hannah,
My name is Lisa and I had a partial nephrectomy on my right kidney June 7, 2004. I experineced everything you are. I am still in pain and take pain meds. It gets frustrating, but they've run all kinds of tests and don't know why I'm in pain. Keep in mind everyone is different. And healing does take time. Take care and I hope you have some relief soon.
Lisa
Joined: Feb 2009
14 months post radical nephrectomy (traditional). No numbness, no lump anymore. It all went away after about 6 months and I was able to sleep on the surgical side again at that time. I had a lot of pain where they cut off the rib to get into the kidney, which felt "sharp" for about the same length of time and prevented my sleeping on that side. Perhaps this is what you are feeling there? Good luck on this and keep your spirits up. We are alive and this is a cancer that can be beaten if caught in time, and remember, it was in an organ for which we have a "spare". How lucky are we??
Joined: Feb 2009
It is comforting to me that what I am experiencing is not uncommon. I have the numbness and the lump as well and was not prepared for either (my radical nephrectomy, laparoscopic, was just 6 weeks go). My numbness is dissipating gradually but the lump is not diminishing. Does anyone know if there's anything that can be done to help it along? Also, my lump is just below my belly button and to the right (makes me look quite lopsided). Does this location seem normal?
Indeed we are lucky. It's hard to keep that in perspective sometimes when "normal" is something different from what it once was.
Joined: Mar 2009
I had a partial mephrectomy 8 weeks ago, I still have bulging and pains all around the incision site across to my stomach and I often get dull pain in my back too. The bulge seems to increase as the day goes by or if I do too much. I went back to work this week but was exhausted and in pain after 4 hours. I like to be active so its all quite frustrating. I suppose 'patience' is the key word for us all here and we need to take it easy and be kinder to ourselves.
Joined: Nov 2007
Hi Katie,
It sounds like you should be checking with your doctor about your complaints. I had a partial nephrectomy in Oct'07,and did have a problem about two or three months after surgery...urine leakage had formed a pouch in my abdomen.....It was resolved, and now I am fine.....cancer free and healthy. Call your doctor. It may be nothing. Good luck. Nonatoo