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Indiana Pouch

Blossom76
Posts: 11
Joined: Sep 2005

I would love to talk with any women who have an Indiana Pouch. I had my radical cystestomy surgery on 10-05-05. I'm in my 7th week of recovery and have some questions. I'm currently voiding every 3 to 3-1/2 hours and not getting much sleep. Will I ever be able to sleep on my stomach again? How often should I irrigate? Where can I get the stoma bandages needed? The hospital sent me home with ONE bandage and no instructions for obtaining more. Good news, however, is that the cancer was contained and all was removed. Yippee! I'm just trying to adjust to this new way of life. I'm 47 and ready to get on with it.

Lramsey
Posts: 1
Joined: Dec 2003

Hello,
I am a 7 year survivor of bladder cancer and I have an indiana pouch. You are welcome to email me. I can also be found on web. I have a page. I know how you feel. That is about what I got when I left the hospital. I have learned a bit over the years.

Blossom76
Posts: 11
Joined: Sep 2005

L Ramsey...I've sent you an email. Also, what is your web addess? I'd like to see your site.