Nov 13, 2005 - 8:04 am
My mother was diagnosed with GBM4 three weeks ago. We had no real beforehand suspicion anything was wrong. They have told us, it is inoperable and have told us the time frame for death will usually occur in typical patients (like your loved one is a typical patient) in three months. After having been given the treatment options, we decided Mom would not want to go through the terrible treatment to extend her life by months. It is amazing to me, that in such a short period of time, someone who was so driven could fall into such a state that she can not eat, go to the bathroom, or say more than two or three word sentences. It is hard on my me, trying to support my father, be information director for the rest of the family, and endure criticism from other members of the family about how we are handling things. I find it amazing that people who want nothing to do with my mom's care when she is home needing 24 hour help, are the first to arrive and criticize when she has been placed in a nursing facility. My only concern is allowing my mother to follow her wishes and live/die the way she wants. I feel as the weeks have moved on, the pressure has not been relieved, but increases. If nothing else getting to vent here is therapeutic and allows me to collect my thoughts. The fear that I have is that I am not anywhere near strong enough to get through what everyone needs me to get through.