Oct 31, 2005 - 10:48 am
My husband was diagnosed in August. They operated and removed the tail of the pancreas, a lymph node, spleen, left kidney, and an adreanal gland. The mass was huge, about 21cm. The size of a basketball. He is doing well and there were no signs of it in the bloodstream. He goes for a liver scan with Octriotide this week to see if it is on his liver. I am interested in knowing more about the doctors in Sweeden and how to contact them. Also if anyone is familiar with MEN 1 and a doctor that knows about that. We have had very good care at Emory but are contacting a Dr. Yao at MDA. Any information you have will be helpful God Bless all of you that are dealing with this. You are in my prayers.