CSN Home » Cancer specific » Multiple Myeloma

Is Multiple Myeloma considered "chronic"?



Total items found: 3

colesgrands
Posts: 1
Joined: Oct 2005
October 10, 2005 - 5:53am

My husband has IgG Multiple Myeloma and is approximately 18 months into his treatment with Thalomid and Decadron plus Zometa. He is fairly worn out most of the time and having to have lens implants due to what the Decadron did to his eyes. We recently had a discussion with his oncologist on his treatment plan when the oncologist stated that because Multiple Myeloma is now considered "chronic" in the medical community, he would prefer to treat my husband with the different meds available until something better comes along (Revlimid?)! All that was fine with us however we both were surprised at his casual use of the word "chronic" as everything we read does not indicate "chronic" for the majority of the patients with this cancer. I do know they are putting many cancers into a truly "chronic" state but cannot find anything published to back up this statement. Is there anyone out there who can help us out on this search for written evidence of MM being "chronic"? We are interested in a auto stem cell but our oncologist seems to feel otherwise. My husband has come from 6000 IgG to 2000....he actually went lower....the doctor lessened the meds....he immediately bounced back up to 2400! We are feeling somewhat confused! Thanks for input!

JCrowell
Posts: 3
Joined: Mar 2004
December 4, 2005 - 10:43pm

I have been treated at UAMS in Little Rock AK for Two years this coming May. I am in complete remission as of August 2005. You may want to contact UAMS in Little Rock. This was the place to be for my treatment, they saved my life. Good luck and God Bless

vj50
Posts: 3
Joined: Mar 2003
January 6, 2006 - 12:21am

I belong to an MM listserve (a type of online bulliten board) and most of us on there prefer to consider MM a chronic disease. For many people it can be controlled for a long time either by having a transplant or taking certain drugs, the same as "regular" chronic diseases. As far as having a transplant, many people (including myself) have done well on just drugs alone, but it should be your choice. Even if you like your doctor. if he does not want to listen to your thoughts on the subject, it might be worth it to get a second opinion (preferably from a hemotologist/oncologist or MM specialist).