I'll try to explain the best I can in English what's my problem.
I'm 32 female Polish,6 years ago I came to live in US and decidet to stay here, so forgive me please for my language mistakes:)
I've been diagnozed that I have depression(pannic attack, etc.) about 10 years ago when my mother died for cancer(no thyroid).
I've been diagnozed that I probably had a thy cancer in Feb'05(ultrasound, needle biopsy), but doc wasn't sure about that(biopsy"atypical cells").
I don't have insurance, so I went to county hospital. First surgery July'05 removed right side of thy, biopsy result:
"...follicular carcinoma,oncocytic type, with multifocal capsular and vascular invasion, surgical margins free of tumor, T2 Nx Mx... ... round nodule measuring 2.7x 2.5x 2.2 cm..."
Second surgery- 3 weeks after August'05 to total remove thyroid. Docs didn't inform me how would I feel with a hormonal therapy and gave me Cytomel 25 mcg daily. In a couple days i felt like one big mess:stomach, could't sleep, weight gain very fast, tired, etc plus imidiately huge depression came back to my life. I really was going crazy, I found this web site, read and tryed to calm down myself. I followed the doctor's appointment and told them how I feel- they inform me it's mostly from depression(nobody even mension about hormon levels, blood test). I deel with my depression since '94, so I knew imidiately something is wrong, I know my depression symptoms. So here's what the docs did; They put me on Cytomel 50mcg(25 twice a day) and scheduled my Iodine Therapy on November'05. Two weeks before iodine therapy I have to complitely stop Cytomel.
I have had my blood test diagnozed in this hospital only 4 times: before and after each surgery. They never inform me what is my calcium level or nothing. One young doc just told me to take couple Tums a day if I'll fell not good with my stomach.
I want to go to out of hospital doctor to have a second opinnion about my treatment, but becouse I don't have insurance i want to bring him as many documents and tests as possible to a visit. So I have a lot questions, please help me:
- should I take a Cytomel till the 2 weeks before Iodine therapy or maybe they supposed to give me something else. Now, when I have a bigger dozage of Cytomel I fell better(2 days now), but I'm affraid that I'll start feel symptoms from the high thy level in a couple of days- already have headaches, musce pain
- what kind of blood test I should do before I'll go to doctor- I mean calcium level and something else?
-what about the scan and when they should do it- now or before/after RAI; should it be full body scan or head/ neck only?
-I find out my dozage of RAI it will be 200 mci-isn't it too much?
- low iodine diet-when? How about my diet now?
- how shuld I know what stage is my cancer; docs inform me 3 times: first time after first surgery they told me it's I-st stage, afterbiopsy it's II-nd stage and now they told me it's III-rd...
Well, I'm sorry that I asked so many questions, but I really fell lonely now and each time I ask them(county hospital) docks don't give me any details.Last time I heard that everything will be fine and everything is from depression-no sens to me. They make my depression bigger because I'm not informed enough.
Waiting for help from people who've been through this, thanks.