Jul 05, 2005 - 11:33 pm
Hello everyone, I'm new to this message board. My husband was diagonsed with a GBM in April of 04, he had surgery to remove a plum sized tumor that was on his left side between his frontal/parietal lobes & very close to his speech center. He immediately started with the Temodar and radiation (tomo-therapy). However 4 months later the tumor had recurred to the original size. Despite a bad surgical consult, we found another neurosurgeon who was more positive, he resected 90-95% of the tumor and put in the gliadel wafers. At that time his oncologist recommended that he stop the temodar because it seemed to not be helping him since his tumor recurred so quickly, even after finishing the radiation. We sought out opinions on the gamma knife, but they wouldn't do it because the tumor bed was "crescent shaped" which apparently isn't the most desirable shape to perform gamma knife on. So 2 months after his 2nd surgery and at the suggestion of a 2nd oncologist (who btw agreed with the original onc. about the temodar) he started BCNU. During this time, he has also had trouble with the cavity that was left from the tumor filling up with fluid. His neurosurgeon wasn't sure why, suspected it was possibly dead tumor? He had 2 surgeries to aspirate the fluid. Which seemed to help somewhat.