Jun 21, 2005 - 3:04 am
Morning Kindred Spirits! Diagnosed with T-cell Lymphoma in Feb. in Mayo Clinic Jacksonville. Their protocol was to return home and start standard CHOP Chemo immediately. Went to to UAB in Birmingham, but got a completely different protocol. Theirs was radiation on the site and then a wait and see approach. This was so radically different, I did not know how to make a decision as to which was correct. Went to MDAnderson Cancer Clinic in April, and was sent back home to start what Mayo recommended- Standard Chop Chemo. I have had the second treatment about a week and a half ago. The pain in my backbone/ribcage has been just about unbearable, starting about 3 days after the treatment. I don't see how my body can stand this for 6 treatments. Makes me wonder if UAB's more conservative approach might have been better. The no sleep thing for over a week is really getting me down. Hence the late hour of this e-mail. I would surely appreciate any of your experiences.