CSN Login
Members Online: 8

You are here

myeloma and mds

manti
Posts: 1
Joined: Jun 2005

Hi. My husband is a myeloma patient, diagnosed in July 2000. He had a year of heavy chemo (his doctor at the time thought he would not be eligible for a stem cell transplant because he had kidney failure due to the myeloma. However, he went to UAMS and they did a tandem transplant in 2003.
After 14 months, he is now relapsed and is in stage IIIB. They started him on a very aggressive treatment Velcade, Dexamethasone and Thalidomide.
But after just 1 cycle, his oncologist here in Maine has decided it's too hard on his body. His platelets plummeted to 6 and he was requiring blood and platelet transfusions. The MDS is the other issue--causing his counts to be very low.
Does anyone have any suggestions? We are transferring to Dana Farber in Boston and are hoping the docs there may have some ideas. I have a listening ear, if anyone wants to talk.

ggold
Posts: 3
Joined: Jun 2005

A recent study at Moffit in Tampa has good hope for your husband. Dr. List is leading a study with a drug called rivlamid. or sounds like it. I have been diagnosed with myelofibrosis, a relative to your husbands disease and right now I am not being treated but being watched. I suggest making some contact to Moffit. It is a test/clinical trial, but maybe there is some way he can get on it. The results so far have been stunning. Good Luck and God Bless.

Subscribe to Comments for "myeloma and mds"