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wilms - 4yr old just finished treatment



Total items found: 3

kaz1
Posts: 1
Joined: Apr 2005
April 29, 2005 - 5:08am

I have a 4yr old daughter who was diagnosed last June with Wilms stage iv - spread to lungs - had 6wkes chemo prior to surgery, surgery went well, then 6mths chemo and 14 treatments of radiation to tummy area and lymph nodes just above tummy which I am told will make her 1-2cm shorter - is there any surviors out there that had the same as my daughter - i would love to hear from you - they say she has a 75-80% chance of it not coming back within 3 years (remission time)

onekidney
Posts: 2
Joined: May 2005
May 3, 2005 - 11:12pm

The KCA has a Wilms booklet they'll send you FREE of charge: 1-800-850-9132. You can also download it from the website: www.curekidneycancer.org.

trishpm
Posts: 23
Joined: Nov 2004
July 5, 2005 - 11:03am

You can join an email support group specific to Wilm's Tumor at http://listserv.acor.org/archives/wilms-kids.html .

4yroldcancermom
Posts: 3
Joined: Nov 2009
November 18, 2009 - 8:48pm

Hello, I am a mother of a 5 year old girl who was diagnosed with Wilms last December 2008 (age 4). She also was stage iv, diffused anaplasia, she underwent 7 weeks of chemo before surgery, had her surgery with right kidney removed. It also had spread to her lungs, more on the right with one spot on the left. She also had 3 straight weeks of radiation. She stopped chemo as of Sept. 11, 2009 and had scans, scans were good. She is due to have scans again Dec. 15, 2009. How is your daughter doing now? I noticed your post was in 2005. I would love to hear from you.
mclean4danes@verizon.net