Apr 19, 2005 - 8:38 pm
Hi, I'm new to this site. I'm really grateful to have finally found it. I'm been searching high and low for the last week.
I was diagnosed last Fall (04) with VIN III after I had other surgery to fix my prolapsed rectum. The piece that was taken out for the repair was sent to pathology and was found to have VIN III. I was sent right away to the gyn oncologist. He did a test with vinegar to find out if there was more tissue involved. At the time there wasn't. However he wanted to be cautious and set up apointments for check-ups with my ob/gyn for the same vinegar test every 3-4 months to make sure it did not reccur. I had my first check-up about two weeks ago and the VIN III was back in spades. It now involves both sides of labia and near rectum. I'm scared stiff. My ob/gyn prescribed ointment (chemotherapy type) that was recommended from the gyn oncologist. However I was not able to afford the ointment ($170.00) I contacted my ob/gyn and he wants me back to see him on the 25th for surgical referral. I'm really scared about that.(the surgery that is)I'm trying not completely lose it on a daily basis. I have a support network here, however none of my friends or family have gone through this. That's why I've been looking for support online.
I'm asking anyone out there with this type of diagnosis who is willing to be an emailing buddy to help me go through this please contact me.