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Squamous cell cancer & agent orange

boblow305
Posts: 2
Joined: Jul 2003

I am a Vietnam Vet (1965-66 DaNang) diagnosed with squamous cell cancer of the mouth, neck and lung. I have been reading some of the postings about cancer related to agent orange and wondering if there is a connection. My question is how can one determine if he was exposed to agent orange? Is it possible that one was exposed without knowing?

toota
Posts: 2
Joined: Aug 2004

My husband is also a Vietnam Vet and has recently been diagnosed with non-hodgkins lymphoma. The Veterans administration has deemed him totally & permanently 100% disabled do to agent orange exposure. He is now receiving a monthly compensation and many other benefits. I would strongly recommend that you contact a local chapter and see if you qualify. Good Luck

Blackhorse
Posts: 1
Joined: Apr 2005

Make sure that when your husband goes into remission that you claim evrything that the cancer and its treatment affected. The VA will reduce your rating and may try to say you don't have any residuals problems. DOn't let them get away with it. Keep track of all the meds and treatments. I don't want to bring you down but just trying to help. What I am telling oyu they did to me. I had Non hodgkins too. Have diabettes and heart problems caused by chemo. Good luck!

RalphFerrara
Posts: 2
Joined: Apr 2004

I too have base of tongue cancer. The VA denied my claim ( agent orange ). However I have read somewhere that RYE vs Principi had his denial overturned. Does anyone have info on how I can get access to that case ?

MarineE5
Posts: 757
Joined: Dec 2005

Ralph, I am also a Vietnam Vet and have base of tongue cancer. I was operated on in Oct. 04. The VA denied my claim also, but I am fighting it. Keep at it and I have only recently heard of the case you speak of.

Boblow305 asked if you can be exposed to Agent Orange without knowing it, the answer is yes. If you were in Vietnam, you were exposed, period. You can be exposed to the chemicals just from drinking the water. To much detail to go into on this post, but you can find info on the internet.

poolside
Posts: 5
Joined: Aug 2008

My husband was just recently diagnosed with Squamous Cell Carcinoma. He did two tours in Vietnam where Agent Orange was used quite liberally. I have been doing some research on this cancer and have come up with alot of questions.
Squamous Cell Carcinoma can be caused by carcinogens which can be found in cigarettes. However, Agent Orange had a dioxin in it which was known to be a human carcinogen.
The VA recognizes a cancer called soft tissue sarcoma which is also linked to dioxin exposure and according to what I have read, Squamous cell carcinoma and Soft tissue sarcoma tend to mimic each other and are both hard to diagnose. The suggestion they gave was to have a biopsy sample checked by a pathologist who has extensive experience in diagnosing soft tissue sarcoma.
I am getting ready to fight for my husband on these issues, but it doesn't make any sense to me that both can be caused by carcinogens and Agent Orange had carcinogens in it, yet the VA will only recognize soft tissue sarcoma as an Agent Orange related Cancer when Squamous cell carcinoma is also caused by carcinogens.
I don't know if any of this can be of any help to any of you, but thought I would add the information I have come up with so far. I am not done digging and if I come up with something else, I will share it with you as I would hope you would share it with me also, since we are all in this fight together.
God Bless,
Debbie
(Wife of a Marine)

fighterpilot
Posts: 5
Joined: Mar 2009

I am new to this site,why I don't know since I have had two cancers from this poison. I read your post on squamous cell cancer and thought I would tell you my story in a very few words.

I was in Vietnam from 1964 to 65 where I flew support missions for the spray aircraft. We would come back with it all over us, but were told to wash it off "it is not harmful to humans", yeah right!!!

My first cancer was prostate cancer 8 years ago, I caught it early and so far have not had a recurrence. Last year I was diagnosed with squamous cell carcinoma of the larynx. I had been on 20% compensation from the prostate cancer, it had been 100% but they pronounced me cured last year (I don't think you are ever cured). They put me back at 100% last year when I was diagnosed to have larynx cancer.

So, yes, if you have not already found out, any kind of cancer to one of their approved cancers will get compensation. I never had any argument from them other than their cutting off the compensation after 2 years because of their ruling that I was cured. Since the larynx cancer is recent they put me back on 100%, but yesterday I got notice that they considered me cured so back to 20%. I am getting an attorney and fighting them on this. The side affects of these cancers are terrible and will last until i die.

I hope you have succeeded with your claim, if not anything I can do to help let me know.

J. McLendon

pipemandoo
Posts: 7
Joined: Jul 2009

Hey fighterpilot, I am currently awaiting word from the VA on my claim. I was exposed to AO during my 13 month tour (Phan Rang) 66-67. I am on my 3rd bout with cancer. The first bout consisted of radiation and chemo for cancer of the larynx...which was "cured" for 7 whole months. The second bout required a total laryngectomy and removal of lymph nodes, thyroid and some other associated parts and pieces. It was stage 4 and I was only given a "few months" to live. I'm wondering if the VA would consider the removal of the larynx as "cured" as far as that cancer went? The hole in my neck (which I breathe through) won't go away. I am also dealing with diabetes and now, prostate cancer with the numbers climbing rapidly. All of these "things" are currently listed. My prostate has been trimmed once and wonder if that'll effect their rating any?
AO is an ugly monster that keeps coming back to haunt those that had the misfortune to be in VN or the general area. I wonder from day to day what other "stuff" will come knocking at my door...
My primary means of communication is on my computer and would love to make contact with other VN Vets in this similiar situation. Email me at pipemandoo@myfairpoint.net

teachmar62
Posts: 3
Joined: Mar 2011

Cancer of the salivary gland right cheek was found in 1989. My husband was in DaNang, Quang Tri, Khe Sanh and LZstud in 1968-69. Have any other Vietnam Veterans had adenocarcinoma that anyone knows of. This is not considered an oral cancer as far as I know and VA does not recognize it as caused by AO. However, VA did his surgery and subsequent radiation treatments. He was considered cancer free initially at 5 years and then it was extended to 10 years.

In response to your cancers - I know that if you were cancer free for 5 years you were considered "cured" until a couple of years ago and it was extended to 10 years cancer free so I do not know why VA figured you should be considered cured after only 8 years.

I am writing this for my husband. He asked me to find if there were any other Vietnam Veterans with adenocarcinoma.

Good luck with your problem.

ljnlu
Posts: 1
Joined: Aug 2009

Hi Debbie,
Have you had any luck obtaining Agent Orange benefits for your husband? Hope he is doing well.
My husband was in Vietnam 68-69. In 2006 He was diagnoised with salivary gland cancer; carcinoma to perinodal soft tissue. He applied for benefits and was denied. He appealed the decision and passed away two week later. I am gearing up to continue with the appeal process and feel as you do regarding soft cell tissue sarcoma. Please provide any information that may be helpful.
God Bless you both,
Lu

teachmar62
Posts: 3
Joined: Mar 2011

Hi - my name is Peggy. My husband was also in Vietnam during 68-89 and also diagnosed with salivary gland cancer. My husband was in DaNang, Quang Tri and Khe Sanh. When did your husband develop his cancer? Was he in any of the same areas? I am sorry for your loss. My husband is going to try to appeal the decision now and is looking for evidence to present before appeal time runs out. Thank you for any help you can give us.

robertamica
Posts: 1
Joined: Feb 2010

People have the habit to observ ant critic everything they see from the use of atrazine like herbicide to the harm of eating to many candies and so on .

lifeb4now
Posts: 6
Joined: Oct 2010

The VA recognizes a cancer called soft tissue sarcoma....
excerpt from SARC website;
Soft tissue Sarcoma: Soft tissue sarcomas are the most frequently occurring sarcomas and are a group composed of more than 50 different subtypes. All these subtypes differ in terms of their tissue of origin, clinical behavior, age of occurrence, aggressiveness, the way they spread, genetic alterations, and their sensitivity to certain therapies.

Sarcomas can be anywhere in the body while squamous cell carcinoma specifically occurs inside the upper esophagus and throat and adenocarcinoma occurs in the lower end and stomach in the mucous glands.My husband,also a soldier has adenocarcinoma,his oncologist stated to us the difference in the two;adeno predominately caused by acid reflux and secondly by aged/cured foods and sqam from alcohol and tobacco products cronic use over long period of time.
I admire your fight and determination for your soldier,wives will stand up and do whats needed[guess we learned that from our soldiers]
Va has given a wide spectrum using the sarcoma term-kinda like us saying virus,its up to you to narrow them down and connect the dots to make it specific for your husband case;you need to make a paper trail that ends with them.

TinkwithanAttitude
Posts: 1
Joined: Jun 2013

My husband was also a Vietnam Vet - his last tour of duty in Vietnam ended in 1969. In June 2001 he was diagnosed with Squamous Cell Lung Cancer. The doctors at the VA in Tampa Florida made the diagnosis. They asked him if he was a Vietnam Vet and he said yes he was and that he did 2 tours of duty in Vietnam. They told us that there was a good chance being Squamous Cell that it was directly related to Agent Orange even though they knew my husband had a 45 year history of smoking cigarettes. They sent us to the DAV office right there at the James A Haley VA Hospital. The DAV helped us file all the necessary paperwork for Service Connected Disability and also Social Security Disability. In September 2001, my husband received his Service Connected 100% Disability without any further hassles. Unfortunately my husband died the following June. I now receive the Widows Compensation for the Service Connected Disability.  So don't give up - as I said my husband had a 45 year history of smoking.

 

God Bless you,

Linda

MarineE5
Posts: 757
Joined: Dec 2005

Linda,

Thank you for posting this information as it is very helpful to others. I am sorry to read that your husband died shortly after receiving his disability rating. It is good to read that the VA pointed you in the right direction to obtain the benefits. We hear so many bad stories about the VA, it is nice to read something good about them.

My Best to You and Everyone Here

tesawyer46
Posts: 1
Joined: Sep 2013

I just received a letter from the V.A. denying my claim for benits due to disability caused be Squamous Cell Carcinoma (SCC).  I live and filed my claim in California and the decision was render from an office in West Virginia.

In the denial letter the VA states "Service connection is denied for "SCC" left neck, because there is no evidence linking this condition to Military serivce." 

I served in Vietnam from Dec. 1967 to Dec. 1968 and Nov. 1970 to Nov. 1971.  I was diagnosed with "SCC" in November 2007 and started treatment in January 2008.  treat, which ended in July 2008 consisted of both radiation therapy to the neck area and chemotherapy.  I also sent a total of 17 days in the hospitial be treated for the various ailments that go with the cancer treatment. In addition to the Chemo and radiation theropy I had several CT scans with "contrast".  In May of 2012 while preparing for my last CT scan I was diagnosed with Kidney failure (stage IV, severe).  I also have been dianosed with Thyroid failure and take medication for that. 

Compared to other stories I've read, I am not in bad shape and I may not be entilted to much compensation, if any.  But I am upset that the V.A. has denied my claim base on "non serivce" connected cancer.  It appears they have rendered approvals in some cases and denied others.  That is the purpose of my appeal.  It is likely that sometime in the furture my kidneys will completely fail & I will need further treatment or transplant.  for this reason I need to fight this.  I need proof that the V.A. has approved clainms for Squamous Cell Carcinoma cases base on service connection.

Thanks   

Tim Sawyer

poolside
Posts: 5
Joined: Aug 2008

I did a search on the internet for agent orange and squamous cell carcinoma and came across 2-3 different cases that people won through the VA which connected Agent Orange and Squamous cell carcinoma. I only did about a 10 minute search, but am planning on spending more time to see if I can locate any more information on it.
If I find anything, I will be more than happy to share it wih you and please do the same for me as it looks as if we are in this war together.

gary0521
Posts: 1
Joined: Jan 2013

I have been battling squamous cell skin cancer of the face for over 20 years.  I was in the Navy but my ship was never "officially" listed on the blue water navy ships for the years I was in Nam.  Can you share with me any info you have seemed to find on the subject?  Thank you for your time and help.

Wes_L's picture
Wes_L
Posts: 2
Joined: Oct 2009

First of all, I was impressed to read about your cancer. I was diagnosed with stage IV nasopharyngeal Carcinoma on June 8, 2006; (Head and neck cancer located in nasopharynx, located between the ears and behind the eyes).

I was also afforded the opportunity to go overseas in support of Operation Iraqi Freedom, as a Marine Sergeant. I've made similar claims through the VA. After 5 years active duty, I worked for a DOE subcontractor and for some reason the VA set me up an appointment for an MRI during the time of Hurricane Katrina. Although nothing was found, I was diagnosed the very next spring with the most advanced stage of NPC. Why would they pay $2500-$3000 for the MRI of the brain, unless there was reasoning? Thank you for your service in Vietnam.
"I'll be a Marine till the day I die, on my tombstone 'Semper Fi'!"

tes53704
Posts: 1
Joined: Dec 2010

My husband was also a marine in vietnam and died from Cancer on the base of his tongue. The VA also denied the claim. I need info on what I can do, like which king of lawyer to cantact, ect.

MarineE5
Posts: 757
Joined: Dec 2005

Tes,

I sent you a private e-mail

catalpa
Posts: 1
Joined: Sep 2012

Dear Marine
I am seeking info. on how I can obtain further support to advance my husband's case with the VA. It's been 17 mos and no replies to his claim...it's always "pending." The cancer spawned a terrible autoimmune disease that we continue to fight in addition to his progressive hearing loss initiated from artillery exposure. He was right in the midst of the agent orange spraying when in Viet Nam. Any info. to assist me would be greatly appreciated!

MarineE5
Posts: 757
Joined: Dec 2005

Hello Catalpa,

First, please thank your husband for his service and mention " Welcome Home " to him for me, he will understand the meaning.

Secondly, I am sorry that you both have to be on here seeking information, but it is a great site to find answers.

Thirdly, we will be better off by taking our discussion to this site's CSN Email system ( upper left hand corner block of page)as we will be having some long posts and I generally try not to make my posts too long on the board when possible. You will need to be logged into the site to see the e-mails.

I will send you a test e-mail soon/ few minutes...

My Best to Both of You and Everyone Here

CHeath
Posts: 2
Joined: Apr 2012

It sounds like we have similar problems.  I had tonsil cancer in 2003 and tongue cancer in 2009.  I got VA benefits for Prostate cancer in 2003 for cancer that was diagnosed in 1997.  I didn't apply until 2002 and it took about 10 months to get that.  I have been turned down several times for the tongue and tonsil cancer but I keep finding more information to keep the claims going.  Currently I am appealing and waiting for a hearing.  I have information on different claims so I hope this will eventually lead to a favorable outcome.  Keep the faith.

CaptRon
Posts: 1
Joined: Feb 2009

Looking for answers.I can't find anything on the internet about RYE vs Principi. Can anyone direct me to it?
Seems the VA claims AO involvement for every area around the tongue but not the tongue itself. What's up with that?

MarineE5
Posts: 757
Joined: Dec 2005

CaptRon,

Rye vs Principi was a case that was won by a Vet who had a private practice represent him. They are located in both Cherry Hill, NJ and Philadelphia, PA. If you google Rye vs Principi, their office will come up, not sure if I would be breaking any rules posting their name, so I won't just to be on the side of caution.

Secondly, you can go the VA site < va.gov > and search the site and look for the section for the ( Board of Appeals ). Once in there, you can do a search for all the appeals for Base of Tongue cancer and read the rulings. You will see many have been denied, but you will also see there are those that are granted. Read who represented the Veteran and what they brought to the Hearing.

Many people show up unprepared as far as proof and expert opinions. I would suggest that anyone applying for benifits have a Rep from a Veteran's organization ( DAV or Vietnam Veterans of America, etc ) help them as there is allot that has to be done with the maze of paperwork.

I hope this is of some help to you, Welcome Home. Semper Fidelis

notself
Posts: 1
Joined: Apr 2010

Here is a link to the web site of the attorneys who won the Rye vs Principi appeal for benefits. http://www.wcblegal.com/successes.php?action=view&id=31

JoBaby
Posts: 3
Joined: May 2010

There is a case on this site (http:/www4.va.gov/vetapp08/files3/0824005.txt)that has at least one case won on the tonuge with full benifits. I would suggest using a VFW rep in the case and be sure to ask lots of questions and stay on top of your case with your rep. If you live close to Goldbsy Okla. there is a place called Veterns Corner and they are a bunch of great guys and girls that help you get your paper work ready and you prepared for your fight can't beat them they have really helped my husband with all of this we just started using them in Dec 2009 and are now getting results at least not taking 2 to 4 years to get a respons for the VA.

JoBaby
Posts: 3
Joined: May 2010

My husband and I have been fighting for his benifits for this cancer since 1997 I have the site you are looking for (http://www4.va.gov/vetapp08/files3/0834005.txt) the last time I was on this site was 11/27/2009 I found 4 cases at that time were Squamous Cell cancer is being paid full benifits. We are now facing VBA our selfs and hoping this does't take for ever to get to my husband is now on a feeding tube for all food intake we started with the right parioda gland and then right tonsil, and now behind the back of the throat and unoperable so I wish you luck and if you have any information that will help us in getting ready for this next step please let us know. My spelling isn't the greatest wish it was better... Thank you JoBaby

poolside
Posts: 5
Joined: Aug 2008

According to a pamphlet that we receive every month titled Semper Fidelis Memorandum for Retired Marines, they now have a blanket policy that states that vietnam veterans may be eligible for compensation & health care for certain diseases associated with Agent Orange, the defoliant sprayed to unmask enemy hiding places in the jungles throughout Vietnam. Special health care and compensation benefits are available to the 2.6 million men and women who served in Vietnam between 1962 and 1975. They then go on to list all of the cancers that they say are based on clinical research of presumptive disabilities.
Unfortunately Squamous Cell Carcinoma is NOT one of the cancers listed, but there is a cancer listed called soft-tissue sarcoma, acute that seems (from what I have read) to mimic Squamous cell carcinoma. I also stated earlier in another posting that both of these cancers can be caused by carcinogens and Agent Orange had a dioxin which was known to be a human carcinogen, however they are saying that Squamous cell carcinoma is related to smoking. You stated you were in the service in 1962, so I believe you are qualified, but we need to get together and get more information on Agent Orange so we can prove that the carcinogens that were in it that they have already agreed caused the soft cell tissue sarcoma, acute, has the same components as the Squamous cell carcinoma which they are currently denying being caused by Agent Orange.
Best of luck and if you find out anything, please let the rest of us know.
God Bless,
Debbie
(Wife of a Marine)

primmy865
Posts: 1
Joined: Feb 2009

Hi, we just found my dad has squamous cell cancer of the face and hands. He also is a vietnam veteran(marine) he has also been on kidney dialysis for the last 7 to 8 years.We just got the call this morning, now we are in process of contacting the Va. I have told my dad to have a pathologist check it so see if it may be the soft tissue sarcoma (which i see mimic each other) I will fight for my dad on this. His troop was all killed but for 4 men who made it back. He is not healthy enough to fight I can and will. Please if you can give me any information on what i can do or should do it would help thank you

Proud daughter of a Marine
TIna

MariaGonzalez
Posts: 3
Joined: Jun 2009

My father, a two tour Vietnam Vet, has squamous cell carcinoma on his buttocks and in his lungs. He was also diagnosed with non hodgkins lymphoma shortly after the squamous diagnosis. The Va approved our claim that both cancers were directly Agent Orange related and he now receives monthly benefits. My best advice is to find a Va representative that you can speak to in person, as they are a huge help with all the paperwork and will be the most qualified to explain the entire situation to you. If they deny you a first time, fight even harder on the second. Never stop fighting for your father, he needs you more than ever.

Barnyard Chicky
Posts: 2
Joined: Jan 2011

Hi Maria,
God bless your father, you and your family. My husband was diagnosed with Carcinoma of the rectum/buttocks. I am mainly fighting this battle Agent Orange for our 21 year old daughter's education fees. Please let me know how you'll went about it and who represented you so that I can continue. It has been a very long road for me since October 19, 2000 when he passed and I sometimes feel like giving up but I know that is not what he would like for me to. I sent you a friend request and hope to hear from you soon.

69superbee
Posts: 1
Joined: Jun 2009

HI DEBBIE, I'M A MARINE VIETNAM VET WHO IS GOING THROUGH TREATMENT FOR SQUAMOUS CELL CANCER OF THE TONGUE AND AM ALSO IN PROCESS OF TRYING TO OBTAIN SOME BENIFIT FROM VA BUT HAVE HIT A BRICK WALL-THEY ARE WANTING MORE INFO FROM ME AND MY DOCTOR CONCERNING THIS CANCER AND LIKE YOU I HAVENT HAD MUCH LUCK FINDING SUPPORTING INFO.I KNOW YOUR LASR POST WAS IN AUGUST AND I WAS WONDERING IF YOU HAVE HAD ANY LUCK WITH VA? I AM ALSO A NON SMOKER AND ALL MY DOCTORS THOUGHT THAT WAS WEIRD THAT I DIDN'T. HOPE YOU AND YOURS ARE DOING WELL. THANKS, TOM

Wes_L's picture
Wes_L
Posts: 2
Joined: Oct 2009

There are many Marines with squamous cell cancers. I too was diagnosed and all I can suggest is to keep fighting for it. There are too many Marines with Squamous Cell Cancers. We should get together and fight for this with the VA. Although the VA saved me from stage IV NPC, I still believe it to be ethical to help you and the many other "Devil Dogs" with similar cancers. A man who raised me, who my mother divorced, was a Marine Vietnam Veteran with agent orange and a purple heart; compliments of a claymore mine. Lets keep in contact on here and develop MPCOA (most probably course of action). BAMCIS, SMEAC,5 paragraph order...remember???

nstob
Posts: 1
Joined: Dec 2009

I, like almost everyone else here, started searching the net for info on the linkage of AO with oral carcinoma. My father is a marine, Vietnam vet and has been fighting mouth sores ever since his return from Vietnam (~'69). The cells in his mouth (cheeks & tongue) have finally gone from being open, painful sores to squamous cell carcinoma and verucous carcinoma. He has been seen by a doc at Ohio State U. hospital that had only seen this in his career a couple of times - all in men that were in Vietnam. We have just returned from the MD Anderson cancer hosp. in Houston for a second opinion on the course of action he should take. He is looking at an extensive surgery, with reconstruction of the tongue, the pulling of every tooth in his head so that he can have radiation to his mouth, and a 6-9 month recovery period.
He has already been given the run around in Columbus by the VA and has since asked me if I can find any info and help with trying again.
To be honest, I could care less what the VA thinks or does. My father has health insurance and I am sure that is the best route for him to go. If I have anything to say about it, he will stay with his team at OSU or go with the fantastic docs. in Houston at MD Anderson.
What I would like to see happen is a study compiling info from the many Marine, Vietnam vets with sqamous cell carcinoma. There has got to be at least one grad student somewhere looking for a research project. I plan on talking to my father's doc. later this month and asking if he knows of any grad students that could be interested in this issue or at least willing to put a study together.
If others could do the same (try to find someone to do a study), and that study be published in a big name journal - the VA may have to recognize squamous cell not only for those that really need the compensation but for all those marines that served proudly and now fight cancer due to AO.

Jason1111's picture
Jason1111
Posts: 64
Joined: Apr 2011

I can relate to you as I live in ohio as well. We just got back from seeing the Specialist at the Arthur James Cancer Treatment Center at Ohio State, which we were told was the best in the state. That doctor found out more in 30 seconds about my fathers issues than the darn VA has in the past 18 months. My father has been going to the VA for 18 months about the lumps in his neck and lymph nodes. The VA doc there has been stating in his medical record that its just a cough, or the flu. I am sorry but if your darn lymph nodes swell up for 6 months and other lumps start to form in the neck, its a little bigger problem that just the flu or having a cold. One VA doctor even had the audacity to write in my fathers medical record," Patient is a nice fellow, but he is a little over anxious,!" OVER ANXIOUS? REALLY? Why HELL YES HE IS! HE IS CONCERNED THAT THERE IS SOMETHING WRONG AND THERE IS! Thanks to the VA it has been growing and spreading for the past 18 months! I wouldnt take a sick dog to the VA. They really do not care about the vets.
SO now my father has Squamous Cell carcinoma of the lymph nodes, and tongue, stage 4, and goes in for surgery on May 5th with radiation to follow 4 to 6 week afterwards.

Thanks VA!!! you really know what your doing......

luz del lago's picture
luz del lago
Posts: 452
Joined: Jul 2010

Jason,
I am so sorry to read of your father's diagnosis. And extremely angry at VA for causing delay in treatment through their insensitivity! I am now battling VA for my husband, as he passed away in December, lung cancer.

I have learned to channel my anger into positive avenues. I have become an out spoken advocate for Veterans!

What war or conflict was your father in? Do some research. Keep and copy all his medical documents. Gather any and all military documents. He may have a claim to VA.

But most importantly, take care of yourself. He will need you through his battle. Find time to just relax with him, enjoy life. This beast called cancer can be overwhelming and all consuming if you let it.

Lucy

TIM M
Posts: 2
Joined: Jun 2012

I just found this site. I have also just found I have Squamous cell first in My Lymph node right side of neck Then through having my right Tonsil and a biopsy of various areas when removing the tonsil they located Squamous cell in the base of my tongue. Just had seven teeth removed to prepare for radiation and Chemo. Fortunately I have great health insurance and some of the best doctors in the field. Love to here from you.

lbritta1
Posts: 1
Joined: Sep 2010

my husband died june 18th this year. no benefits yet.

JoBaby
Posts: 3
Joined: May 2010

I have been doing a lot of looking on the internet and found out through a medical file open to the public that most of the squamous cell 90% cancers from smoking are on the left side of the throat and that the glands are caused from carinogens not smoking so maybe now my husband has a fighting chance to win this battle of 13 years feels like forever... My husband did two tours in Vietnam and was exposed to agent orange also he had boils and all when he first came home but some how all of those medical records can't be found. They were also preparing to remove his arm when a boil finally popped and those medical records can't be found so I hope everyone has better luck than we have had with this battle for benifits well deserved..

Barnyard Chicky
Posts: 2
Joined: Jan 2011

Hi JoBaby,
In reading your comments about smoking and and the long battle, 2 tours in Vietnam. Ok so the Gov. doesn't want to acknowledge Squamous Cell Cancer as Agent orange related. It occurred to me that the soldiers of Vietnam were issued C-rations and in those C-rations they were issued cigarettes.

My husband died of carcinoma of the rectom and was also a Vietnam Vet. They do not recognized this. So while reading the many posts, and all the articles and such that I have read, I wondered just how many people thought about the soldiers that did smoke were issued cigarettes by the government. Doesn't that somehow make the government somewhat responsible? Just maybe many of us are looking at it from just an Agent Orange cause when perhaps we all, including myself should place the "issuer" of cigarettes as part of the C-rations to be held responsible for so many Veterans returning with smoking habits that continued throughout their lives and have caused cancer.

I am going to go at this more aggressive now from both angles because these men served to protect us. I researched C-ration contents, ask your hubby if he received those same C-rations with cigarettes.

Good luck on your battle and may God be the guide for alot of wrong being turned to right!

truckin2260
Posts: 3
Joined: Jan 2013

Hi miss jo I am a Veteran going thru throat surgery for cancer in my right tonsil.  I find it interesting about what you found and would like to know if you still have either the link or the website you found it on .  The reason I am asking id that they say it is due to my smoking and yet they removed my right tonsil. Any all help would be greatly appreciated.  Thanks Dennis

george 214
Posts: 2
Joined: Oct 2010

could you please email me the list of cancers you have found to have affected us vet exposed to AO,, I have just been dianosed with cancer in my tonsil and starting treatment monday with surgery,,,,,,

royarogers
Posts: 6
Joined: Nov 2010

http://www4.va.gov/vetapp09/files5/0940472.txt
http://www4.va.gov/vetapp09/files5/0940472.txt

this is a recent case where it was decided as follows

In accordance with the medical
definition:
The respiratory system includes the
nostrils, nasopharynx, oral pharynx,
glottis, trachea, bronchi and
bronchioles.

Oropharynx (as part of the respiratory
system) includes base of the tongue, the
soft palate, tonsil and the side and back
wall of the throat.

Having determined that the tonsil and base of the tongue are
part of the respiratory system, service connection for this
disorder is presumed under 38 C.F.R. § 3.309(e).
Accordingly, his claim for presumptive service connection for
throat cancer and squamous cell carcinoma of the left tongue
base and tonsil is granted.

please repost this link anywhere u can and lets all copy this case and turn it over to our case worker.

vbkeller
Posts: 6
Joined: May 2008

We just went through the VA process and I must tell all military folks that they MUST DOCUMENT ALL health issues from WHEN THEY ENTER THE SERVICE. My husband has experienced hearing loss since sitting in the old missile silo's--which has gotten worse over the years-but never had it documented---so it has been thrown out.Don't let this happen to you---DOCUMENT!!!!

usmc
Posts: 1
Joined: May 2009

I was a Marine in Vietnam in 1967-68, exposed to Agent Orange, and 6 years ago diagnosed with Soft Tissue Sarcoma. The tumor was attached to the ascending colon and therefore the ascending colon, appendix and my gall bladder as well as the tumor were removed. I was not aware of the connection with Agent Orange, so didn't apply for compensation right away. After couple of years a VA social worker told my wife that if I applied for it I would get an automatic 100% disability compensation. I am here to tell you it isn't true! I got 20% for residual scarring and loss of the colon. Then, just two months ago I was again diagnosed with a soft tissue sarcoma in the same area only deeper. The VA did that surgery and did it poorly. I ended up with a "civilian surgeon" in an outside hospital and I am now well on my way to recovery. This didn't keep the Seattle VA hospital from claiming fees in excess of $105,000 to my insurance company. I have once again requested compensation commiserate with the disability I have and, so far, I just get the run around and stall tactics. My wife is working on my claim as I am really not well enough. I do know and have explained to her that they keep the treatment and compensation branches of the VA saparate for a reason other than service to the vet. They have a whole staff of insensitive jerks whose only purpose in live is to deny any claim put before them. I would like to sit across from table from them when they decide how to, once again, deny my claim; or, better yet, wish upon them, in their lifetime to live what I and others have lived.

Having vented my spleen, I must say my purpose is two-fold. I must encourage you to never give up. The system is designed to wear you down. It is too bad we have no voice speaking for us. Also, so you understand what you are dealing with, the VA is governed by the Code of Federal Regulations (CFR). Google VA and CFR and it should put you on the right track. It will give you an insite as to how the jerks think. Use the wrong buzzword or terminology and they will use it against you - not request clarification.

Lastly, for the last six years plus I have been unsuccessfully looking for someone with my form of cancer who has survived.

Stay in there and don't let the turkeys put you down.

Coolidge67
Posts: 2
Joined: Oct 2009

I just joined this site looking for info on Agent Orange-related cancers because I was told there had been some new action by Congress. I was a Marine Corp grunt in 67-68 (crashed the Tet party in Hue - were you there?)and was diagnosed with squamous cell carcinoma in my right tonsil six years ago. It metasticized down the lymph nodes on the right side of my neck. Many surgeries later with chemo- and radiation therapy I have been told I can call myself a "survivor" just this year. Like many of us, I never say I've 'beaten' cancer - bad mojo or something. I thank God that I am still here and am grateful for every day.

My question is: why are so many respiratory cancers considered AO-caused but not swallowing cancers? Like many others of you, I am not considered a good candidate for cancer. I smoked a little but not much, am not over-weight, and not a heavy drinker (I ride a Harley but I dont think that counts).I was fortunate in having private health insurance and didn't have to go to the VA for treatment. I got a great surgeon but he doesn't agree that AO is a cause. Some of his colleagues, however, feel that it "may" be. On other issues, specifically hearing loss, the VA has been pretty good to me.

We need to keep posting to this site, and any others you may know of, to track those who were NOT good candidates but got cancer, anyway, through AO exposure.

Regardless, good luck and God bless you all in your fight. The Marine Corps taught me to keep putting one foot in front of the other and that's what I did - with the help of a terrific wife who just wouldn't let me give up. I'll check back once in a while to see how you are all doing. I hope to hear more from you.

Stay strong!

jimbo12
Posts: 2
Joined: Dec 2009

my mouth cancer also went to my neck. have had radiation 39 treatments and chemo. radiation burned my mouth up. have to keep a water bottle everywhere i go.

Coolidge67
Posts: 2
Joined: Oct 2009

I just joined this site looking for info on Agent Orange-related cancers because I was told there had been some new action by Congress. I was a Marine Corp grunt in 67-68 (crashed the Tet party in Hue - were you there?)and was diagnosed with squamous cell carcinoma in my right tonsil six years ago. It metasticized down the lymph nodes on the right side of my neck. Many surgeries later with chemo- and radiation therapy I have been told I can call myself a "survivor" just this year. Like many of us, I never say I've 'beaten' cancer - bad mojo or something. I thank God that I am still here and am grateful for every day.

My question is: why are so many respiratory cancers considered AO-caused but not swallowing cancers? Like many others of you, I am not considered a good candidate for cancer. I smoked a little but not much, am not over-weight, and not a heavy drinker (I ride a Harley but I dont think that counts).I was fortunate in having private health insurance and didn't have to go to the VA for treatment. I got a great surgeon but he doesn't agree that AO is a cause. Some of his colleagues, however, feel that it "may" be. On other issues, specifically hearing loss, the VA has been pretty good to me.

We need to keep posting to this site, and any others you may know of, to track those who were NOT good candidates but got cancer, anyway, through AO exposure.

Regardless, good luck and God bless you all in your fight. The Marine Corps taught me to keep putting one foot in front of the other and that's what I did - with the help of a terrific wife who just wouldn't let me give up. I'll check back once in a while to see how you are all doing. I hope to hear more from you.

Stay strong!

mo48pbr
Posts: 1
Joined: Mar 2010

I to had the some cancer as you ,but on the left side in 1998. I was in VN 1969 - 1970. My case has been denied twice but still working on it. Maybe someday the VA will own up to it. God bless

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