CSN Login
Members Online: 9

to steved--re: pet scans

Moesimo's picture
Posts: 1075
Joined: Aug 2003

I have to disagree with you on your post concerning pet scans. I work in a radiology dept. and have discussed with many of the docs tests that I have needed since my cancer diagnosis. I was diagnosed on 3/17/03 and saw a general surgeon that day who told me I did not need a pet scan. (This was not a major cancer center.) The radiologist who read my cat scan said that a pet scan was the gold standard of treatment and not utilized like it should be. Luckily my oncologist ordered the pet scan. I saw a surgeon at a major cancer center for a second opinion, he also requested a pet scan. He was an oncology surgeon and who I chose to do my surgery. Since then I have had 2 more cat/pet scans. The radiologist said if anyone ordered a pet scan later on they would have something to compare it to.
A pet scan is not 100% and there are false positives. There was an area of concern on my last cat scan, which was followed by a pet/cat scan. It came back as positive, but some of the docs thought it was scar tissue. I was having surgery and the area of concern was removed and it was indeed scar tissue.
I think if someone is diagnosed today and there docs don't order a pet scan they should find a doctor who will.

I am sorry that this is so long.


Posts: 708
Joined: May 2004

And so the story continues. Gotta tell you.. as soon as I was diagnosed, I went to MD Anderson for all my care. They did NOT get a PET scan until after I had a pulm nodule/met.

There are reasons for and against the PET. But, sadly, no absolute correct answer. The information a PET scan yields is only as useful as the pre-test probability allows it to be.

Some cases warrant PET from the beginning, others don't. No steadfast rules. Find a doctor who can explain why you are getting/not getting test; so you trust and understand them!

I too am sorry this is so long. jana

Subscribe with RSS
About Cancer Society

The content on this site is for informational purposes only. It is not a substitute for professional medical advice. Do not use this information to diagnose or treat a health problem or disease without consulting with a qualified healthcare provider. Please consult your healthcare provider with any questions or concerns you may have regarding your condition. Use of this online service is subject to the disclaimer and the terms and conditions.

Copyright 2000-2015 © Cancer Survivors Network