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Any survivors of Cholangiocarcinoma?

Posts: 2
Joined: Jan 2005

My uncle was diagnosed with Cholangiocarcinoma, and has been cured, but experiences pain constantly. He is very despondent, and beleieves he has only 4 years left to live. He desires to talk to anybody that has had Cholangiocarcinoma; just to see what to expect. If you have survived Cholangiocarcinoma, please email me at: pburdick@mccanntech.org. I would like to ask a few questions. Thank you.

Posts: 1
Joined: Sep 2003

My mom was just diagnosed with this cancer a couple of weeks ago. She seems to be in a great deal of pain. What is your uncle doing to help with the pain?

Posts: 1563
Joined: May 2006


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Take care and be well,

CSN Dana

Posts: 5
Joined: Nov 2006

I hope your uncle finds a way to be comfortable. I had a liver resection in jan of 06 and so far I am doing well with very little pain. There is minor discomfort but nothing like you describe.I do not try to guess how long, rather I will fight as long as I am able. What stage was your uncle at when first diagnosed? what treatment did he recieve?thank you for your info Pat

Posts: 2
Joined: Jan 2015

Hi pjc3618, my name is Nina my dad was diagnosed with cholangiocarcinoma in May and got a liver transplant in October thank God. He is doing well and he is scheduled to start quemo tomorrow. I am despretly searching to find people who have gone through this to know what helped what worked and well just to talk to some one going throught the same thing. I would love to talk to you my cell phone number is (832)537-1607 you can call me any time or send me an email. Thank you and God bless you. 



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