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Any survivors of Cholangiocarcinoma?

pburdick
Posts: 2
Joined: Jan 2005

My uncle was diagnosed with Cholangiocarcinoma, and has been cured, but experiences pain constantly. He is very despondent, and beleieves he has only 4 years left to live. He desires to talk to anybody that has had Cholangiocarcinoma; just to see what to expect. If you have survived Cholangiocarcinoma, please email me at: pburdick@mccanntech.org. I would like to ask a few questions. Thank you.

Kweis
Posts: 1
Joined: Sep 2003

My mom was just diagnosed with this cancer a couple of weeks ago. She seems to be in a great deal of pain. What is your uncle doing to help with the pain?

AuthorUnknown
Posts: 1561
Joined: May 2006

Hello,

You can also contact this individual through their personal CSN email account by clicking on the envelope icon below their message in case they are no longer checking the discussion boards.

Take care and be well,

Dana
CSN Dana

pjc3618
Posts: 5
Joined: Nov 2006

I hope your uncle finds a way to be comfortable. I had a liver resection in jan of 06 and so far I am doing well with very little pain. There is minor discomfort but nothing like you describe.I do not try to guess how long, rather I will fight as long as I am able. What stage was your uncle at when first diagnosed? what treatment did he recieve?thank you for your info Pat

godleadtheway
Posts: 2
Joined: Jan 2015

Hi pjc3618, my name is Nina my dad was diagnosed with cholangiocarcinoma in May and got a liver transplant in October thank God. He is doing well and he is scheduled to start quemo tomorrow. I am despretly searching to find people who have gone through this to know what helped what worked and well just to talk to some one going throught the same thing. I would love to talk to you my cell phone number is (832)537-1607 you can call me any time or send me an email. Thank you and God bless you. 

 

Nina 

lil_punch
Posts: 1
Joined: Feb 2015

Hello Nina, I am very happy to hear about your dad's recovery. God works in mysterious ways. I read that you would like to talk to someone in a similar situation. Well I would like the same. My mom was diagnosed with cholangiocarcinoma this past year. She is currently recieving chemotherapy still, but her recovery isn't certain. I would very much appreaciate chatting with you about this cancer. I have found it very hard to cope with my mom's cancer and it has been difficult finding someone to talk to. I hope to hear from you soon.

Anyone else that would like to talk about bile duct cancer please feel free to contact me.

JZ51953
Posts: 1
Joined: Feb 2015

Hi, my wife was recently diagnosed with cholangiocarcenoma. This all started with stones in the gall bladder which were removed with an ercp, followed by laporascopy to remove the gall bladder.  Biopsy of the gall bladder revealed cancer.  Next a liver resection was done along with removal of some lymph nodes.  Bile duct cancer was discovered in the section of the liver that was removed.  We are scheduled for a ct scan tomorrow and chemo to start next week.  We live in south east Iowa and everything up to now has been done at the University of Iowa hospital in Iowa City. We were told that any additional surgery or a liver transplant were not an option.  We have sent all of the records to the Mayo Clinic in Rochester and are waiting for an opinion from them.  Last week I Googled "Bile duct cancer" and up came a link for "Eurekalert science news". Research is being done at the University of Edinburgh in Scotland on a new way to fight bile duct cancer.  It involves a key pathway of cell division that drives tumor growth in bile duct cancer.  This pathway is known as "wnt".  Lab studies have shown that this method of treatment has prevented growth of bile duct cancer cells and has reduced tumor size in test animals. I would be very interested to know if any similar research is being done in the United States.

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