Jan 21, 2005 - 3:07 pm
Hi all, hope everyone is doing well. Have my candle lit for Lisa as we speak.
Well Scott's appointment did not go as well as planned. We met with surg onc (Dr. Sardi) to discuss surgery for his peritoneal carcinomatosis (same surgery Lisa is getting now). They said he has many tumors in his abdomen and small bowel. We need to schedule more scans because when he did his exam, he could feel tumors and thinks they may be in liver and pelvis as well. We brought scans from Feb. 2004 (orig dx), July 2004 (when we were told he was NED) and Dec. 6 (when they operated for scar tissue). Well it turns out that he was NOT NED in July, cancer was there all along. Needless to say, we are extremely upset about this. Dr. Sardi showed us where the cancer is, plain as day. Someone screwed up big time!! He said we should have come to see him 6 months ago, and things may have been different. He is still considering surgery, but cannot give us a definite answer until more scans and blood work are done. He said this past surgery in Dec. complicates things for him because the surgeon used mesh to cover his abdomen to avoid scar tissue again, and this could trap tumors.
We are so upset by all of this. Scott no longer trusts his oncologist. And to make matters worse, our insurance (Aetna) does not like to cover this type of surgery. The office manager at Dr. Sardi's office said there is always a problem with them. We are waiting for the insurance to authorize this set of scans (CT & PET), and then once these are complete, we will have another consultation. If all goes well, we are looking at end of Feb, beginning of March for surgery.
Well thanks for letting me vent. I have such a headache right now. I think I will drown myself in much alcohol tonight! Prayers to all.
PS: Anyone know a good lawyer!!