Dec 08, 2004 - 6:27 pm
I can't tell you what it meant to me to read all of your thoughtful posts!!!!
I am SO Sorry that I haven't replied sooner but I was busy getting things set up with Hospice and Social workers. I know that I was in a very bad place when I posted last. I just didn't know where else to go to let everything out. I want to thank everyone for being there for Bob and I and listening to me go on and on!!!!
Hospice came last Thursday and Social worker on Friday. You guys were right Hospice has been very helpful. After they spoke with Bob for a long time he admitted to them that he needed more pain meds. I was so thankful for that as I know he was uncomfortable. He is doing ok. We have had some very long talks about the future. He admitted that he was putting them off as he didn't think that I could handle them. I told him I can't take care of the things that he wants done if he doesn't ask me to. I told him as I have told him many times through all our years I am good at reading his mind but I am not perfect at it yet!! Hospice has stopped in a couple of time during the week to check in in Bob even though he said that he isn't ready for them. They are doing a very good job at notpushing him into anything which I am so happy for. I told them that if they push he will put the brakes on and we don't want that. I want him to be as comfortable as possible. His friends have been stopping by and making him laugh which is a great help to me to hear him laugh!!!! He is getting more confused as the days go by. It bothers him not being able to remember things so I just tell him I will post notes all over like wall paper if I have to. He said don't do that as I stink at wallpapering. Past History when we were doing the upstair over after the kids moved out. WE joke when we can about when his baby is due. It bothers him but he is finally accepting help from me getting dressed as he can't reach his feet or bend over to get his pants on. I just tell him this is pay back from when he had to put my panthoses on when I destroyed my back years ago.
I am feeling better knowing that he is willing to accept some of the changes that are going on even though they are little ones. I can't imagin how hard this is for him!!!! I have a Dr. appt. tonight at 8:00pm to try and finally convince my Dr. that I need something to shake this cold that I picked up from one on the kids on the bus a week before Thanksgiving. Hopefully things will go well and I can get a chance to talk to him also about Bob. This cold isn't helping my energy level at all.
I am in the process of planning a Christmas Party at this club close to the house where Bob's favorite band is playing on the 17th. I am hoping to make it a special Christmas gathering with Bob's close friends!!! I am hoping to make it a surprise but time will tell if that works out. I have already talked to the manager and Bob will be getting the red carpet treatment!!!! I would love to get him into a limo for the first time but I think that that would be pushing it a little.
I am sorry that I have gone on. I am also sorry that I haven't answered anyones posts but there just hasn't been any time these past few weeks. My prayers go out to everyone!!!!
Thank You all again from the bottom of my heart for everything you guys had done and continue to do for us!!!!
Thank You ----Love to ALL!!!!!!
Sue and Bob