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Second three months of Folfox

rejoyous
Posts: 259
Joined: Nov 2004

Hi. I've been on the Folfox regime for six sessions, every other week for the last three months. This is my half-way point, so I have six more sessions to go. So far it hasn't been so bad--I've had some stomach queasiness, some tingling in my hands and mouth, and a lot of fatigue. But following my last treatment (#6) I was much, much tireder for much longer. I wonder what other people have experienced in the later treatments with Folfox?

BobCh
Posts: 6
Joined: May 2004

Hi, I've been on folox for 11 treatments with one to go and have yet to have been able to figure out a pattern of feelings. I've kept track of the feelings between treatments. Nothing is consistant, except that sometime in the time between, you can feel the various side effects! There hasn't been any accumulation, so it's bearable. I have one more treatment then I start the testing, biopsy,CT/PET Scan and full blood work. I hope I get good results for my Christmas present this year!! I've been battling the monster since January 2000! Keep the faith.

rejoyous
Posts: 259
Joined: Nov 2004

Thanks, BobCh, what you said is helpful. Maybe there is no pattern! Meanwhile, I'm hoping for your results to be positive and your Christmas bright. It's quite a journey, isn't it?!

nanuk's picture
nanuk
Posts: 1363
Joined: Dec 2003

Everyone seems to have somewhat different responses to folfox-you don't mention which folfox protocol, so it is difficult to compare, but my experience with side effects on folfox 6 was progressive, and unbearable at tx # 8..chemo brain, nausea, insomnia, neuropathy,sensitivity to cold, side effects from the meds supposedly designed to control side effects, etc. Blood counts went down during and after protocol, and remain low/out of range 6 months after stopping the chemo. Bud

rejoyous
Posts: 259
Joined: Nov 2004

Thanks, Nanuk. I'm so new to this I didn't even know there were different versions of Folfox. I'm on 12 sessions, every other week, of a two hour in-clinic drip of Oxalyplatin and Fluorouracil, followed by a 48 hour portable catheter infusion of Leucovorin. My red blood cell counts are a little low.
What's chemo brain? Best, Rejoyous

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