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Books on Hodgkin's?

6browns
Posts: 15
Joined: Nov 2004

Hi,

Does anyone have any recommendations on books that might be helpful on Hodgkin's? I'm not a medical professional (and I don't play one on TV ;-)) so something that is more lay-oriented might be better in this early stage. I figure that as we get more into treatment, I'll get smarter and be able to understand more of the medical technology/terms, etc.

Thanks in advance!

Best regards,
Lisa

Maur1966
Posts: 23
Joined: Oct 2004

Hi Lisa,
I have not read this book, but I have thought about buying it.
Hodgkin's Disease: A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet ReferencesBinding: Paperback
ISBN: 0597839271
Length: 1100 hundredths-inches
Number Of Items: 1
Number Of Pages: 332
Publication Date: January 01, 2004
Publisher: Icon Health
Sales Rank: 874594
YOu just have to be careful of publishing dates. You may even be able to find it on Ebay or half.com for a fraction of the cost. I found a great book on Ebay for .45 cents...and I would recommend it to anyone going through chemotherapy and the people close to them. It is called "The Human Side of Cancer" by Jimmie C. Holland, M.D., and Sheldon Lewis. This has helped me with the many emotions I was feeling and it helped my husband also. It can be difficult, but just know that there is a light at the end of this uncertain time. I have had three chemo treatments so far, 9 to go and have a ct scan scheduled on Monday to "see what's going on". I'm looking forward to it, but at the same time, I am a nervous wreck. Please let me know how A is doing and best wishes to you both. Maureen

Maur1966
Posts: 23
Joined: Oct 2004

Here's a review of the book:

Publisher's Note
In The Human Side of Cancer, Jimmie C. Holland, M.D., explores the broad range of emotions people with cancer and their loved ones experience from the moment of diagnosis through the treatment and its aftermath. For more than twenty years, Dr. Holland has pioneered the study of psychological problems of cancer patients and their families -- whom she calls "the real experts." In The Human Side of Cancer, she shares what she has learned from all of them about facing this life-threatening illness and what truly helps along the cancer journey. This book is the next best thing to sitting in Dr. Holland's office and talking with her about the uncertainty and anxiety elicited by this disease. And it is a book that inspires hope -- through stories of the simple courage of ordinary people confronting cancer.

Offering the latest scientific information about the mind-body connection and cancer, Dr. Holland dispels the countless myths surrounding this controversial subject, including the notion that a person with cancer is somehow to blame for getting the disease or for not getting better.

Dr. Holland disputes the current one-size-fits-all approach to coping with cancer, based on her experience that everyone has a unique way of coping, which should be respected. She also provides the latest information on "medicine that doesn't come in a bottle" counseling, support groups, meditation, and other coping strategies that can help. This book imparts Dr. Holland's message of common sense and caring.

The Human Side of Cancer provides practical and compassionate guidance for dealing with

A diagnosis of cancer and its uncertainties
Societal myths and beliefs that may make coping more difficult
Cancer treatment and its aftermath
Life after a cancer cure
Illness when comfort replaces cure as a goal
Issues for families, including grief

Dr. Jimmie Holland, a pioneer in the field of psycho-oncology, has spent years talking to people with cancer and their families and presents a new understanding of what it's like to face this dreaded disease. She understands that everyone copes very differently with such a prospect, and puts forward the controversial yet commonsense notion that the current overzealous belief in the mind-body connection leads many people to blame themselves for getting cancer, or for not getting better....Sensitive and eloquent, THE HUMAN SIDE OF CANCER offers cancer patients and their loved ones honest and reassuring advice on dealing with the greatest challenge of their lives.

kiren
Posts: 40
Joined: Jul 2004

Well, I work in alibrary so my opinion would eb if you go to your local library they will help you find tons of books on cancer topics. I usually do my readings at the library. Libraries have a good resource of printed books and online help for latest information too.

positive
Posts: 75
Joined: Dec 2003

Hello, my name is Valerie and my dad is in remission over 6 months now from Hodgkins Disease. My dad was stage IIA non bulky, nodular sclerosis. My dad was considered early stage, high risk due to his age 71. My dad is a young 71 year old he does not look his age and has never been sick a day in his life. He went through 4 cycles of ABVD and 17 radiation treatments. He had 2 nodes in neck and one under armpit. He felt very tired during the chemo and always had a quessy feeling in his stomach. He got through the chemo pretty well. He tried to stay as active as possible. He went to work everyday, but came home early.

Its not an easy road and it will be an emotional rollercoaster for you and your husband. You need to educate yourself as much as possible and let your husband be aware of the side effects of chemo. Hair loss seems to be the most traumatic for people, my dad had a full head of hair and he lost it all, but the good thing, is that it all grew back the same. My dad looks great. My dad is feeling good and is very active, he works and goes to every Giant game and travels with my mom, he is just going on with his life. Please try not to worry and be strong for your husband. The internet has enough knowledge. the book doesn't seem to be necessary. I used to print out positive articles about how curable hodgkins is and give them to my dad. He said that made him feel better. If your husband is in stage II, he has a very good prognosis. What sub-type is he? I know lots about hodgkins, my 2 other sisters and my mom gave my dad lots of love and support, I was the one who always asked questions to the doctor, he would laugh at me all the time, he used to say "you really know your hodgkins". Is your husband going to have ABVD. Is he seeing an oncologist who has treated lymphoma?

Take a deep breath and smile, your husbands gonna get through this you'll see. Hodgkins is one of the most curable cancers. The Chemo responds very well the the hodgkins. Be on top of the doctor and ask lots of questions. Write things down, my mother was a complete scatter brain , when you find out your loved one has cancer your brain goes to moosh. You get very forgetful, thats all normal. I would always go with my parents to the appointments to listen, thank God for me, I was always able to answer there questions. My mom is alot better now.

I hope I have put your mind at ease. I can go on and on, there are alot more things like neulasta and the bleomycin, when the time comes and your husband is going through his treatments, you will have this web site to refer to and there lots of people to reply about your questions, there all hodgkins survivors, what a wonderful thing.

Think positive and tell your husband to say he's gonna beat this.

My email is jcm1101@aol.com anytime if you have any questions or need to talk. hang in there lots of hugs and support.

truejoy8's picture
truejoy8
Posts: 41
Joined: Jan 2004

Hi Lisa,

This isn't a book on Hodgkins but if you are looking for answers on healing both the physical and the emotional it is invaluable. It helped me so much when I was diagnosed a year and a half ago. It's called Love, Medicine, & Miracles by Bernie S. Siegel, MD. It also deals alot with how to develop a relationship of trust with your doctor which I find very important. And don't worry, you'll pick up the medical terms in no time. Before you know it you'll understand everything they say on ER ^_^!Good luck to you!

Shanti

DenMorton
Posts: 3
Joined: Jan 2005

Try reading Cancer A Medical and Spiritual Guide for patients and Their Families ( sorry for the long name) By William A Fintel and Gerald McDermott.
It helped me whyen I was diagnosed!
Keep the Faith

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