Oct 16, 2004 - 10:15 am
In august 2003 I was fainting from loss of blood (long periods) . Had surgery to remove Uterus cancer (clear cell and serous cell type carcinoma)stage 2 or 3(invaded cervix) by full hysterectomy. I had 3 lots of chemo carboplatin/epirubisin, then 6 weeks radiation treatment followed by 3 more lots of carboplatin/epirubisin . CA 125 was 50 after surgery decreased to 30 after first chemo then went up to 58 before radiation treatment. After radiation treatment took it down to 14. However final 3 lots of chemo (chemoscarboplatin/epirubisin) increased to 140. I had to have a second surgery to remove 2cm secondary under left hip bone and removal of omentum in june 2004. My CA 125 a little over 2 months ago was back at 80. I am afraid to have another CA 125 test as I am told by doctors that it will probably go up again and that the cancer although not visible at macro level is still there at the molecular level.Doctors say it is just a matter of time(i.e. months) before it shows up on CT scan when CA 125 increases.
CA 125 (cancer antigen 125) should be less than 30. Doctors do not recommend any further treatment until cancer returns on CT scan. Anyone know what other chemo I should try to lower my CA 125. With ovarian cancer with clear and serous cell type same carboplatin/epirubisin and taxol combination is used and usually the CA 125 goes down from hundreds to less than 10. However no successful scientific studies have shown carboplatin/epirubisin on clear and serous cell Uterus cancer is successful.Doctors say not many or any studies have been done on this type of cancer as very rare(less 5% of women who get uterus cancer have either the clear or serous cell type, both very aggressive cancers). Most common Uterus cancer(different cell types to mine) has a survival of 80% or more over 5 year period. However my cell type (clear + serous) has a survival rate over 5 years of less than 5% as my cancer is very aggressive. Does anyone know of other chemo I can try? Maybe Taxol? I am only 46 years old with three children aged 18, 16 and 15 and a loving husband that need me alive