Sep 15, 2004 - 8:57 am
I saw my oncologist on Monday for the first time post-op. I had my thoracotomy two weeks ago and he says that everything is moving along beautifully (thank the Lord!). My scar is healing, my breathing is excellent, ect. He thinks we should proceed with one round of FOLFIRI and then have the surgery on the left lung in two weeks! I agree with him, as I would hate to totally recuperate from this last surgery to do it all over again. I figure bring on the pain simultaneously and the convalescence will be shorter. The pathology is still not back but my CEA is 2.6 (totally awesome as it was 8.2 at one point this summer)! My oncologist is hoping that the two surgeries will get rid of all macroscopic disease, we will do a few more rounds of chemo after the next surgery, and then I WILL HAVE A BREAK! OOH, REMISSION! There were definitely times when I didn't think it was possible... It took almost two years but I'm starting to see a finish line of sorts. It would be so nice to not be on chemo... Trying not to be too cocky, as I'm scared to jinx it, but you can never be too hopeful, right! My oncologist says IF and when it comes back (he said the word if, although I know a cure is a really, really, long shot), we will go for Avistan. Of course, this drug is not FDA approved in Canada and my doctor doesn't want me on a clinical trial because then there is the chance that I won't get the drug. So, somehow we are going to try and raise 100,000 dollars Canadian so we can go buy the drug from the US. That seems like an awful lot of money to me, but my oncologist said we will get the community involved, McGill, the hospital, ect. He suggested that the company might even offer a deal since I'm young, a student, ect. Maybe I could do ads for Avistan... "Got metastatic CRC, just take Avistan and you'll feel great!". We shall see. There are a lot of ifs and buts, however I am pleased that my oncologist is thinking ahead. Sorry this is such a long message. Had to type it out so the good news could sink in!
Lots of love to everyone and have a wonderful day!