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Chronic Lymphocytic Leukemia
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Aug 14, 2004 - 3:12 pm
I've read several messages on this web site posted by fellow CLLers. I hope all of you will check out www.clltopics.org It will save your life if you find yourself in the hands of an oncologist/hematologist who hasn't kept up with the latest information about this disease. I've had CLL for a year. Prognostic indicators are CD38+, lymphocyte doubling time less than 12 months, 11q22 deleted. No one within my medical care team knew to look at these factors until I brought it to their attention by reading the CLL Topics Website. This group is dedicated to education, advocacy and has recently partnered with the Mayo Clinic for an upcoming clinical trial. I've read it before, and now I'm a believer..."The life you save may very well be your own." Be smart. Check it out. |
Joined: Mar 2004
i also was told i have CLL last year and am also CD38
positive.51%. I have only had one oppinion. There is no CD22del. on my blood work. What has your dr. done for you? Mine says he may have to treat me in Nov. I dont know anyone with leukemia It wood be nice to talk to some one else to compare notes with.
Joined: Apr 2005
HOW ARE YOU DOING? MY HUSBAND WAS JUST DIAGNOSED WITH CLL C38 B CELL LEUKEMIA. 2ND STAGE. WE ARE VERY WORRIED AND ANXIOUS. HE IS 5O YEARS OLD. CT SCAN SHOWED SOME ENLARGEMENT OF SPEEN AND LYMPH NODES IN SPLEEN AREA. WBC 19 TO 34. ALL THIS FOUND ROUTINE BLOOD WORK AND AFTER A BAD FALL. DOC IS NOT TREATING HIM..GOES BACK IN 3 MONTHS...ALL OTHER BLOOD COUNTS ARE GOOD...RBC, HEMOGLOBIN, PLATELETS WE JUST NEED TO TALK WITH SOMEONE WHO IS EXPERIENCING THIS SCARE...READING INFO IS SO CLINICAL AND HARD TO BO