Aug 14, 2004 - 3:12 pm
I've read several messages on this web site posted by fellow CLLers. I hope all of you will check out www.clltopics.org
It will save your life if you find yourself in the hands of an oncologist/hematologist who hasn't kept up with the latest information about this disease.
I've had CLL for a year. Prognostic indicators are CD38+, lymphocyte doubling time less than 12 months, 11q22 deleted. No one within my medical care team knew to look at these factors until I brought it to their attention by reading the CLL Topics Website.
This group is dedicated to education, advocacy and has recently partnered with the Mayo Clinic for an upcoming clinical trial. I've read it before, and now I'm a believer..."The life you save may very well be your own." Be smart. Check it out.