Aug 07, 2004 - 11:09 am
Has anyone had the experience of having areas light up on a PET scan that are not cancer? I know it happens with cysts on CT scans.
I've had a very unsettling experience lately and would appreciate any input on this. It's been over two years since my stage IV dx. Before my last surgery (liver resection in August 2003), I used to read all my records on a regular basis. After the last surgery, when it seemed that finally all the cancer was out of me, I felt that I was in the hands of top doctors and decided just to just relax and do my six months of adjuvent chemotherapy. Everything was going beautifully. CEA was quickly down to normal, CT scan after three months was clear. Bloodwork eventually became normal and healthy.
A month after I finished chemo I was feeling wonderful and had a PET scan that my doctor told me was clear. A few weeks later, he found an enlarged lymph node in my neck and did a needle biopsy. It contained malignant cells. He told me that there was an area on the PET scan that did light up, but that he thought it was my port. I then had a CT scan that showed the lymph node in my neck and a some questionable areas in the abdominal region.
After requesting a full set of all my records, I read the PET scan report and was shocked to learn that there were actually three areas on it that lit up! I asked my doctor about this, and he says that he still thinks that the neck node is still an isolated recurrence.
I'm in the process now of getting a second opinion, but would really appreciate hearing if anyone has had a similar experience.