Hello Everyone -
I see it's been a while since there was a posting, so I thought I'd keep it going. Here is my story and God Bless us all.
I am a 39 yr old mother of 3 (5, 3, and 1). I had been having very heavy periods for a few months, just figuring it was from childbirth last Aug. I finally called my OB, he said to have a sono. They found a large fibroid tumor (size of a baby's head) and said it was benign so not to worry but I needed to have a hysto. So my hubby and I put if off until Sept. Ten days later I got my monthly again, but much worse so I called my OB again and they got me to surgery within a week(6/24/04). The procedure went well, but my OB was surprised at the tumor size (1 & 1/2 size of a football). My last day in the hospital, my OB/GYN told me they found a leiomyosarcoma in my uterus which surprised him, because cancer was not visible from the outside. They told me I was lucky to get it early. The cancer was encapsulated in the fibroid and did not appear anywhere on the outside. MY D&C was clear, as well as the endo curretings and I've had 1 clear CTScan in July. I've seen 2 GYN Oncos. for opinions. My first Onco. was great, very positive and the second was very negative who told be it's between me & God. But they both agreed not to radiate the area but to see if it metastizes. I have to have a pap smear every 2 mths. and CT Scans every 3 months. I feel like a sitting duck. I have an appt. scheduled at Johns Hopkins on 9/1 and they seem to be more thorough (they want all my surgical slides, CT films, and surgical reports). I am trying to be as positive as possible and so far I am cancer free.
I have been through a lot of grief in my life but I've never been so scared. It seems as if things were too perfect, life just jumped up and bit me in the butt. I am much closer to God now and feel sure things will work either way. I cry every time I think about leaving my little kids. I'm not so afraid of dying, but afraid of hurting my kids. My hubby is very positive and keeps assuring me it's not coming back. All I can say is to be a positive as possible and to keep praying and ask God for acceptance and strength. I appreciate every moment I have with my family and I simply ask God for strength and thank him for the day.
